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Old 01-23-2013, 10:49 PM   #1
vlcarr
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Join Date: Jun 2009
Posts: 343
Re: Libido is lousy and ...

This is timely. Like Janis, I was just prescribed the ring by my onc. I could not take it any more. The lack of desire was bad enough but the dryness became so bad some days it was uncomfortable to walk! I do have an understanding husband and the last time was so painful we just gave up I think. Glad to read the other suggestions. I did not know the ring was what I would be getting until I picked it up. I had flashbacks of years ago attempting to insert a diaphragm and the thing slipping out of my hand and flying across the room. It was pretty hysterical. I had to use some lubricant to even get the ring in the Sahara. I've had it around 2 weeks now and I think it's getting better but have preferred another method. However, they did tell me she would prescribe the safest possible. Like you guys, I could really care less. Maybe this will help.
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Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 01-23-2013, 11:25 PM   #2
dchips1
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Location: Mesa, Az
Posts: 219
Re: Libido is lousy and ...

After working for a GYN doc, he prescribed Macrobid, capsules (nitrofurantoin) 100mg 1 after any intimate encounter that involves stimulation around your urethra area. And immediately void after your time together is up. take 1 next day as well. Prevents nasty UTI/ bladder infections. This works for me very well, without then the next day I am in massive pain when urinating.
He also used to say to soften tissues around the opening use olive oil, (PLAIN no extra spices!!), massage into the tissues and slowly stretch the tissues.
I was 35 and had a hysterectomy, 37 dx with stage 4 breast cancer, and I so need so rehanging of the bladder and support of the rest of the plumbing. This is low on the priority list, but it does cause me distress not being more intimate more often with my husband.
Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain

1/29/14 HIHO HIHO its off to Neuro surgery I go





Life is Good when you wake up in the morning and take a breath and know that God has given me another day.


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Old 01-25-2013, 11:36 PM   #3
nsebesta
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Red face Re: Libido is lousy and ...

my nurse at MDAnderson said to use olive or coconut oil! Haven't tried it yet though.
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