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Old 01-16-2013, 10:23 PM   #1
conomyself
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Join Date: Sep 2012
Posts: 111
Re: Did you lose or gain weight while on chemo?

I lost some after diagnosis, maybe 7 pounds, then another 7 or so during the first two weeks of TCH, then things settled down for me, stress-wise, and I started eating again and put the 7 back on and then another 8 or so, which started after the fourth round. This seemed to be all fluid retention.

I've lost maybe 4 since my peak. I still have some fluid retention but it seems to be slowly coming off. I still need to lose about 30, as I was quite overweight to start with.
__________________
7/30/2012 Diagnosed with metastatic breast cancer
8/3/2012 CT scan mets to liver (major!!), lungs, spine, and skin
8/8/2012 Biopsy results: invasive ductal carcinoma
ER+/PR+/HER2+ amplification 4.8 (whatever that means)
8/13/2012 Brain MRI (clear); bone scan verified CT scan
8/14/12 started Taxotere/Carboplatin/Herceptin, 2 rounds (added Neulasta after 9/4 treatment)
9/4/12 CA 15-3: >3000
9/15/12 CA 15-3: 840
9/15/12 started Taxotere/Perjeta/Herceptin, 4 rounds (no Neulasta)
10/29/12 CT scan showed dramatic improvement in all areas - largest liver met 2.5 cm, largest lung met 10 cm
12/17/12 Started Perjeta/Herceptin, 2 rounds
12/17/12 CA 15-3: 17 Yay!!!
1/21/13 CT scan showed improvement - largest liver met 1.9 cm, largest lung met 2 mm
1/29/13 CA 15-3: 12 Started Herceptin only
3/12/13 CA 15-3: still 12 yay!! Back to Perjeta/Herceptin
3/29/13 CT scan more improvement - largest liver met 1.2 cm, some lung mets disappeared!
3/7/14 started Tamoxifen
6/27/13 - 1/2015 CT scan stable
Began a diet of only single ingredient foods and went nearly NED excepts for some tiny lung spots - ask me if you want to know more...
1/2015 - 1/2017 CT scan stable
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Old 01-17-2013, 10:05 PM   #2
starwishn2
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Join Date: Jul 2012
Location: Utah
Posts: 124
Re: Did you lose or gain weight while on chemo?

I finished TCH in December now just doing Herceptin. I have gained 12 pounds since starting chemo. It frustrates me as I had lost 40 before the diagnosis. I'm hoping after my surgery tomorrow (yeh - remove expanders) I'll have the "get up and go" to do something. I'm hoping chocolate and carbs won't taste so good!

I agree with everyone else. Chemo is a tough time - it's ok to pamper yourself and eat what you enjoy. There will be time again to lose weight and get in shape.

Best wishes~
Jeri
__________________
Diagnosed 16Dec1993 ITP (auto immune disease - low platelets)
Splenectomy 11Nov2009
Rituxen May2011
ITP playing nice
Diagnosed 3Jul2012 BC

2 cm - Grade 2 - Stage IIB
HER2+++

ER+/PR+
bilateral mastectomy 20Jul2012
Metastasized cancer found 1 lymph node
expanders placed during surgery
TCH chemo "cocktail" started 24Aug2012
every 3 weeks - 6 treatments
Herceptin - 18 treatments
LAST treatment Taxotere & Carboplatin 7Dec2012 -yay!
Continue with Herceptin 26Dec2012

Started Arimidex 01Jan2013 (for 5 years)
Surgery to remove expanders/reconstruction 18Jan2013
Infection in left breast from reconstruction/infection in most nails - SO many meds! 22Feb2013
Left implant not playing nice.... might need to remove and try again - blah! 04Apr2013
3Jul2013 - one year since diagnosis - booo cancer!

15Aug2013 LAST chemo infusion!! YIPPPEEE!!!
13Sep2013 2nd reconstructive surgery.. the FOOBs are looking good!



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