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Re: H0-ho-hope someone has some PERJETA feedback...
I had my first infusion of just Perjeta/Herceptin on 12/17. My first infusion with Perjeta was on 9/25, but it was with Taxotere & Herceptin, replacing Carboplatin. I noticed then that it was way better than the Carboplatin.
After the 12/17 infusion I've felt like a million bucks overall, but that's due to not having Taxotere. My onc wants me to have Benadryl with the infusion, so I am, and after the Benadryl wore off I was just fine.
But come to think of it, I had diarrhea after Christmas dinner, so 8 days after. It was pretty intense, but I attributed it to something I ate, not the Perjeta. I'll have to see if I have it next round as well...maybe it was actually because of the Perjeta.
But I haven't had any other symptoms as far as I can tell...
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7/30/2012 Diagnosed with metastatic breast cancer
8/3/2012 CT scan mets to liver (major!!), lungs, spine, and skin
8/8/2012 Biopsy results: invasive ductal carcinoma
ER+/PR+/HER2+ amplification 4.8 (whatever that means)
8/13/2012 Brain MRI (clear); bone scan verified CT scan
8/14/12 started Taxotere/Carboplatin/Herceptin, 2 rounds (added Neulasta after 9/4 treatment)
9/4/12 CA 15-3: >3000
9/15/12 CA 15-3: 840
9/15/12 started Taxotere/Perjeta/Herceptin, 4 rounds (no Neulasta)
10/29/12 CT scan showed dramatic improvement in all areas - largest liver met 2.5 cm, largest lung met 10 cm
12/17/12 Started Perjeta/Herceptin, 2 rounds
12/17/12 CA 15-3: 17 Yay!!!
1/21/13 CT scan showed improvement - largest liver met 1.9 cm, largest lung met 2 mm
1/29/13 CA 15-3: 12 Started Herceptin only
3/12/13 CA 15-3: still 12 yay!! Back to Perjeta/Herceptin
3/29/13 CT scan more improvement - largest liver met 1.2 cm, some lung mets disappeared!
3/7/14 started Tamoxifen
6/27/13 - 1/2015 CT scan stable
Began a diet of only single ingredient foods and went nearly NED excepts for some tiny lung spots - ask me if you want to know more...
1/2015 - 1/2017 CT scan stable
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