 |
11-14-2012, 06:58 PM
|
#1
|
|
Senior Member
Join Date: Feb 2010
Location: TN
Posts: 175
|
Her2Support needs our support too
I have been away from this board for several months and spent the last few evenings reading the hundreds of posts listed during my absence. I continue to be awed by the incredible support offered to those and their families suffering from this terrible disease. It reminded to make a donation in hope that in at least in a small way it could help the group continue with its efforts.
I am doing well at present and find comfort in knowing that this board will be there for me in the future should my status change. Thank you everyone. --bird
__________________
Male Breast Cancer, DX 5/15/09, IDC, STAGE 1, 1.7 cm, HER2+++, ER+(95%)/PR+(75%), Ki67 40%, grade 3, 0/5 nodes, TX: mastectomy, TCH finished 7/19/10, radiation 6 wks., Tamoxifen on going, bisphosphonate 24 mos.
|
|
|
|
11-15-2012, 10:33 AM
|
#2
|
|
Senior Member
Join Date: Apr 2011
Posts: 403
|
Re: Her2Support needs our support too
Hi ! Are you the admin of this website? if we need to make a donation to maintain the website who/where does the check go to? Thanks!
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
|
|
|
|
|
11-15-2012, 02:01 PM
|
#3
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Her2Support needs our support too
I think Becky and Steph are moderators so if you send them a pm they can advise!
Thanks for the reminder 1rarebird, sadly I'm not in a position to do so right now but hopefully will be soon.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
11-15-2012, 03:00 PM
|
#4
|
|
Senior Member
Join Date: Feb 2010
Location: TN
Posts: 175
|
Re: Her2Support needs our support too
Yan Yan--
To make a donation you can click the "Make A Donation" tab that appears in the top right hand corner of Home page for Her2Support.org. At least that is what I did. Hope this helps--bird
__________________
Male Breast Cancer, DX 5/15/09, IDC, STAGE 1, 1.7 cm, HER2+++, ER+(95%)/PR+(75%), Ki67 40%, grade 3, 0/5 nodes, TX: mastectomy, TCH finished 7/19/10, radiation 6 wks., Tamoxifen on going, bisphosphonate 24 mos.
|
|
|
|
|
11-17-2012, 06:39 PM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Re: Her2Support needs our support too
Information for making donations to HER2Support may be found by clicking on the "Make a Donation" tab on the upper right hand corner of each page. The mailing address is listed for donations by check, and a link for on-line giving is also listed there.
Acknowledgments will be issued by the Druther family.
The HER2 Support Group Org is a 501(c)(3) non-profit tax exempt charitable/educational publicly supported organization run entirely by volunteers.
All funds raised go toward the direct support of the organization, its programs and web site.
This site has been constructed and all of our activities are being maintained through unrestricted educational grants and gifts from our benefactors. Many thanks to the wonderful members who have contributed financial support to our Website!
If you would like to contribute to the success of our group:
Mail your tax-exempt donations to:
HER2 Support Group Org.
6973 Mimosa Drive
Carlsbad, CA 92011-5156
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 08:35 PM.
|
Linear Mode
