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Old 10-16-2012, 06:23 PM   #1
KaiM
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Join Date: Oct 2011
Posts: 59
Re: 11 Years bc, 10 Year with mets
Shays mom,
What a wonderful post, thank u so much for sharing! I was diagnosed a year ago with mets from the get go, my second child was just three months old. I was so scared I wouldn't even live to see him turn one, but here I am a year later feeling better than I have in years! I know that this disease can turn on me at any time, but I have to live my life with hope that I will be around to raise my children. I choose to live my life with hope because the alternative is just too devastating.
__________________
9/11 - dx 3 mnths after giving birth to my 2nd child. (not a clogged milk duct) ER/PR- HER2+++
10/11 - Initially staged at 2b after unilateral mastectomy
11/11 - CT scan 4 weeks later found spots on bones and liver (crap!) Stage 4
12/11 - starting TCH
5/12 - STABLE. stoping TCH after 6 months and continuing Herceptin with Tykerb and Xgeva
8/12 - STABLE, but I'm calling it NED because all they see is bone scaring!
11/12 - STABLE
2/13 - STABLE
6/13 - STABLE
9/13 - STABLE
12/13 - STABLE
3/14 - STABLE
6/14 - STABLE
9/14 - STABLE
12/14 - STABLE
...Continue Herceptin and daily Tykerb and scans every 4 months
1/16 - STABLE
11/18 - Five level spinal fusion from collapsing vertebrae due to spinal Mets/radiation
12/19 - STABLE
Mom to Audrey (12 yrs) and Hudson (8)
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Old 07-31-2016, 12:31 PM   #2
pinkrosepetal
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Re: 11 Years bc, 10 Year with mets
Love seeing your post year after year stable.
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Old 08-10-2016, 08:31 AM   #3
bhardy15
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Join Date: Aug 2016
Posts: 1
Re: 11 Years bc, 10 Year with mets
Your story sounds hauntingly like mine! I was diagnosed 3 months p/p too. Stage Iv De Novo (from the start). Are you still doing well on Herceptin? I had liver mets and 3 nodes, but all is completely gone after chemo. Please give me hope to see my baby girls grow up!
__________________
Dec 2015 Found lump in Left breast 3 months post baby
Dec 28, 15-Ultrasound and punch biopsy confirm stage IIB breast cancer IDC grade 3 Her2+ er/pr-
Jan 6 2016-Pet scan reveals Liver Mets 3cm
Port placed
Jan 22, 16 started chemo-6 months of Taxotere, Herceptin, Perjeta, Carboplatin.

March, 2016, liver mets are gone per CT scan prior to liver resection! Switched to abraxane due to taxotere allergy
April 2016, no sign of breast lump
June 3, 2016-3cm clot found in my heart next to the port catheter, heparin therapy started. Last Chemo!
Herceptin and Perjeta for life.
June 27,16 lumpectomy
August 2016-starting rads, eventually.
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