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Old 10-16-2012, 07:33 AM   #1
nanblaine
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Join Date: Oct 2012
Location: Wichita KS
Posts: 5
Re: Start, stop, start, stop

I'm sorry to be so ignorant but what do you all mean when you say, "when the herceptin stopped working"? How do you know it's not working unless the cancer comes back? Is there a way to check if it's working or not?
I had never heard of this tykerb stuff and pray I will not need it. What is it suppose to do?
Thanks, Nanci
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Old 10-17-2012, 06:41 PM   #2
Emy
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Join Date: Mar 2012
Location: New York, new york
Posts: 73
Re: Start, stop, start, stop

The cancer becomes resistant to the drug, so it stops working and the cancer grows...herceptin and femara stopped working for me, so now I am on herceptin, tykerb 1500mg and fulvestrant....tumor markers went down and scan was better.....
__________________
Eileen's history her2+, er+,pr-, Pk13 mutation
Feb 2017. Herceptin and perjeta ..still ned
Oct 2015 dendritic cell vaccine university of Pennsylvania..6 weekly injections...boosters every 3 months
July 2015 stopped weekly taxol (2.5 years of weekly taxol) still on herceptin perjeta every 3 weeks..still ned
Jun 2014 liver ablation of 1 liver tumor..now ned
Jun 28, 2013 ca15-3 24, cea 3.8... Pet scan showed 2 liver tumors with intensity of 2.7 and 2.5 (11/13 intensity was 8.0)
Jan 2013 herceptin, perjeta every 3weeks, taxol weekly
Jan 2013 MRI showed 3 liver tumors doubled in size ca-15 is 55 end of month 71, cea 7
Dec 2012. Pet scan showed single liver nodule, having MRI liver on dec18th...MRI liver 3tumors... on herceptin, tykerb , fulvestrant ca-15-3 is 42
Sept 2012 ca-15 went from 85 to 35, pet scan showed decrease
May 2012 herceptin every 3 weeks, 1500 tykerb daily (6pills) and fulvestrant every 3 wks
May 2012 herceptin stopped working ca-15 is 85
Sept 2011 started herceptin every 3 wks and femara daily..mets to liver. Bone and lymph nodes
2011 liver mets...all samples from 2001 and 2010 reviewed...her2 positive, fish 5.4. Er positive, prog neg. Stage 4 breast ca...never was lung cancer
2010 16 weeks of chemotherapy for lung cancer (incorrect). Carboplatin and vinalbine...was actually breast ca mets
2010 misdiagnosed with lung cancer ..2cm tumor removed..lower right lobe removed
2001-2006 tamoxifen
2001. Ductal ca. Rt mastectomy
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