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09-20-2012, 06:59 PM
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#1
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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perhaps nothing you didn't already figureout yourselves,but..sexual dysfunction w AIs
seems to be more prevalent and severe than they thought
Menopause. 2012 Sep 17. [Epub ahead of print]
Sexual dysfunction in women on adjuvant endocrine therapy after
breast cancer.
Baumgart J, Nilsson K, Evers AS, Kallak TK, Poromaa IS.
From the 1Department of Obstetrics and Gynecology, Örebro University Hospital, Örebro, Sweden; Schools of 2School of Health and Medical Sciences, Örebro University, Sweden and 3School of Medicine, Örebro University, Örebro, Sweden; and 4Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Abstract
OBJECTIVE: The goal of this study was to investigate sexual function in postmenopausal breast cancer patients treated with aromatase inhibitors.
METHODS: A population-based, cross-sectional study was conducted among postmenopausal breast cancer patients on adjuvant endocrine treatment and age-matched controls with and without estrogen treatment. Sexual function was assessed with a standardized questionnaire.
RESULTS: In all, 42.4% of aromatase inhibitor-treated breast cancer patients were dissatisfied with their sex life in general, and 50.0% reported low sexual interest; this was significantly more common than in tamoxifen-treated patients and controls (P < 0.05). Aromatase inhibitor-treated patients reported insufficient lubrication in 73.9% and dyspareunia in 56.5% of cases, which were significantly more common than in controls, irrespective of hormonal use (P < 0.05). Tamoxifen-treated patients reported significantly more dyspareunia (31.3%; P < 0.05) but resembled controls in all other concerns.
CONCLUSIONS: Our findings suggest that sexual dysfunction in aromatase inhibitor-treated women is a greatly underestimated problem.
PMID: 22990756
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09-21-2012, 07:43 AM
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#2
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: perhaps nothing you didn't already figureout yourselves,but..sexual dysfunction w
I think any of us who are either on AIs, or were, should print this up and hand it to our onc., gyn., even our GP at our next visit.
Trust me, if the shoe was on the other foot and men were having these issues, I think the medical community would do a lot more to help.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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09-21-2012, 02:06 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: perhaps nothing you didn't already figureout yourselves,but..sexual dysfunction w
Thanks Lani and personally this has been an issue for me but I try to remind myself I'm alive and doing well seven years on so can't have it all???
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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09-21-2012, 02:38 PM
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#4
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: perhaps nothing you didn't already figureout yourselves,but..sexual dysfunction w
Caya, maybe we should print it out for our significant others, too!
Keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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09-21-2012, 03:35 PM
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#5
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: perhaps nothing you didn't already figureout yourselves,but..sexual dysfunction w
I was on an AI for 5 years and had no interest in sex whatsoever. My husband really suffered. When I quit the AI, my libido came back. So there's hope. Unfortunately, my periods came back too (after quitting Zoladex) at age 50. So 3 years on I'm wondering when menopause will really kick in and whether that will have an impact on my libido as well.
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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09-21-2012, 04:08 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Re: perhaps nothing you didn't already figureout yourselves,but..sexual dysfunction w
I raised the issue multiple times with both my PCP and my oncologist at clinic visits.
Result?
I have copies of all clinic notes of those visits and there is absolutely no mention by the clinician indicating any such problem was reported by me.
Moral:
If it isn't in writing, it doesn't exist. If it doesn't exist, it isn't a problem -- or at least, for the clinicians.... and so it doesn't have to be dealt with by anyone except those dealing personally with treatment.
If it isn't a problem for clinicians, it is less likely that any helpful solutions will be explored.
A.A.
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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09-21-2012, 05:36 PM
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#7
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: perhaps nothing you didn't already figureout yourselves,but..sexual dysfunction w
Yep, pretty much a "duh."
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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