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Old 09-08-2012, 12:54 PM   #6
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Loose fingernails...

Yes, Carla is not unusual I found out. My finger nails all turned black. And lifted from the nail bed. Angled. Then -- oozy crusty stuff appeared in between the nail and bed. I went to an excellent dermatologist who assured me that there was no infection.

So I polished my nails red and didn't wear rings, trying to cover up the nasty sight. I felt like I looked like I was rotting. But I wasn't! I put a smile on face, lipstick on my lips, blush on my cheeks and some earrings peeking out from my wig. I did my best. Sure, you will too! It's what we have to do.

I wanted to appear as normal as possible. As good as one could expect under the circumstances. Clutching a tissue 24/7 cause the tears just kept pouring from my eyes. (Refresh + individual eye drops -- every single hour -- finally helped, I learned -- from the 5th ophthamologist I went to...)

My finger tips did kind of sting prior to and during this episode. They felt tender. Sore. (I did 8 mnths of Taxotere, every 3 wks back in the day. That's a whole lot of Taxotere.)

The new regimen sounds keen to me. No walk in the park I know. Stay strong!

I tried Tea Tree Oil once for something. I recall the odor made me throw the bottle away. How do you spell PEE-U...???
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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