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Re: Thanks Mandamoo!
Wow - thanks Dawny! I'm so glad you came up and said 'hi!'
The jet lag is a little worse today - I think I was running on adrenaline yesterday but was wide awake at 4am this morning and ready to snooze again at 2pm. The kids are really cranky and irritable but I know it will pass.
It was lovely to see so many friendly faces yesterday - I didn't intend to make people cry but I kept seeing teary faces so I am glad you laughed too. I realise I keep meeting wonderful women who as you say make this a much less lonely experience.
Pamelamary - I am desperately trying to keep Italy in my head - I was feeling a little blue today at how quickly reality sets in again as I have been trying to sort out my next step.
As for treatment I am off to Frankston to sign up for the Theresa trial. I am hoping for a tdm1 randomization. Thinking if I get control group it will be a choice between tykerb and herceptin combo or herceptin and Abraxane.
I should know more tomorrow - expect I will do baseline scans Thursday or Friday. Stopped taking my tykerb in anticipation of a wash out time.
I'll let you know how I go.
__________________
Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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Hybrid Mode
