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Old 07-15-2012, 05:46 PM   #1
AlaskaAngel
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Unhappy Re: "Sexual Desire and Sexual Response in the Hormone Jungle and Hormone Desert Oasis

Hi StephN,

Both the first endo I saw there (a woman who no longer works at the cancer center) as well as the most recent gyno I saw there were competent and compassionate, but neither of them were savvy about the sexual effects on older chemo patients, with the first making noises about Rx-ing the usual psych drug, which I used (to no effect), and the second Rx'd a bit of topical estrogen to the vagina, basically to no effect.

The counseling center psych docs recognize the inequity of the situation, and one at least was willing to provide some counseling privately, but the center itself is not funded to handle the problems that need addressing over time.

Survivorship gets short shrift and no one is being honest about the true long-term effects because they don't have to deal with them.

I was very low-key, supportive, and non-confrontational at the newbies session, in order not to discourage them from independently considering treatment, despite my own personal views about it.

It was yet another example of how prevalent the practice is NOT to hire female nurses who have done treatment themselves, for oncology services. The perception by treatment-naive nurses is based on what their employing physicians do, which is to minimize discussion about it and divert discussion in other directions.

A.A.
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Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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Old 07-15-2012, 07:21 PM   #2
StephN
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Re: "Sexual Desire and Sexual Response in the Hormone Jungle and Hormone Desert Oasis

AA - Thanks for the further explanation.

I see you even have your exercise schedule on your signature now.

How are you coming with the weight and energy level now that you have done that for a while?
Or are genes and the other effects still winning out?
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 07-16-2012, 05:03 PM   #3
AlaskaAngel
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Re: "Sexual Desire and Sexual Response in the Hormone Jungle and Hormone Desert Oasis

Diet and exercise for age 61 does NOT add up to 36-26-36.... *sigh*

I ran into the problem that adding more exercise (to not just maintain, but lose weight) was tearing up my joints to where it was hard to rest without pain, so one hour a day of low-to-moderate impact is where I max out, which doesn't equate to weight loss. And without more exercise, I ran into the problem that I had to limit my diet to 800 calories a day just to maintain, not lose weight. The metformin seems to help some with limiting hunger, at least. And hopefully it is busy knocking out cancer cells as well.

How are you doing?

A.A.
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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Old 07-17-2012, 12:45 PM   #4
Jackie07
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Re: "Sexual Desire and Sexual Response in the Hormone Jungle and Hormone Desert Oasis

It is a hot topic regardless if one has/had cancer:

Sex in the second half of life
Sexuality is not just for the young. Results from a University of Chicago survey published in 2007 suggested that over half of Americans remain sexually active well into their 70s. That said, sexual activity does subside with age. Biological factors tug in that direction, as do social arrangements: older people, especially women, often end up single when a spouse or partner dies. But researchers at Indiana University report that 20% to 30% of long-lived Americans are sexually active into their 80s.

Now suitable for study
It wasn’t long ago that older people weren’t included in studies of sexual behavior because they were seen as largely irrelevant to the topic: 59 was the upper age limit of a landmark study of American sexuality conducted in the early 1990s. However, the University of Chicago survey focused exclusively on older adults, including just over 3,000 Americans ages 57 to 85. The results lent some legitimacy to the subject of sexuality of older people. Here are some of the main points:

Sexual activity tapers off with age. Both surveys show a decline in sexual activity with age, although the drop-off isn’t as steep as one might expect, and a significant minority (especially men) defies the trend. In the Indiana study, 35% of the men ages 80 and older reported that they had intercourse a few times or more in the past year. In the University of Chicago study, 38.5% of the men ages 75 to 85 reported having sexual activity with a partner in the previous year.

Older women are less sexually active than older men. Both studies show that older women — even the “young old,” in their 60s — are less sexually active than men of the same age. The gender gap widens as people get older.

Partnered sex gets high marks. In the Indiana study, over three-quarters (78%) of the men ages 50 and over rated their most recent sexual experience with a partner as either extremely or “quite a bit” pleasurable. About two-thirds (68.2%) of the women in that age group rated their most recent experience with a partner that highly.
Yet, a sizable minority of the men (43%) and women (36%) in the Indiana study reported that their most recent partnered sexual activity was with someone other than a spouse or long-time partner. This category included casual or new acquaintances, friends, and “transactional” partners — people who engaged in sex in exchange for something, often but not always money.

Masturbation is common. Most men (63%) and almost half of women (47%) in the 50 and over age group reported masturbating in the past year, according to the Indiana survey. As with other sexual activities, the percentage declined with age.

Good health matters. The University of Chicago researchers found a strong association between good health and sexual activity, particularly among men. Diabetes seems to have a greater negative effect than either arthritis or high blood pressure on both genders, but especially on women. In the Indiana survey, a woman’s evaluation of her last sexual experience did not vary with her self-reported health status.

Sexual problems are common. Half of those who participated in the University of Chicago study reported having at least one bothersome sexual problem. Among men, the problems included difficulty achieving and maintaining an erection (37%), lack of interest in sex (28%), anxiety about performance (27%), and inability to climax (20%). Among women, the common problems were lack of interest in sex (43%), difficulty with lubrication (39%), inability to climax (34%), lack of pleasure from sex (23%), and pain during sex (17%). In the Indiana survey, 30% of the women ages 50 and over said they experienced some level of pain during their most recent sexual experience with a partner.

Many men take something to improve sexual function. In the Indiana survey, 17% of men ages 50 and older took an erectile dysfunction drug in connection with their most recent sexual experience with a partner. In the University of Chicago study, 14% of the men and 1% of the women reported taking medications or supplements to improve sexual function during the past year.

[Harvard Medical Review, July 17, 2012]
__________________
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-17-2012 at 01:00 PM..
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