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Old 06-26-2012, 08:57 PM   #1
ElaineM
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Wink Re: taken off Taxotere..trying to remain positive

Chrisy had some wonderful suggestions Sheila.
It might be time to talk to some other oncologists about other options. Doctors are human beings. One doctor cannot be all things to all people no matter how smart or wonderful he or she is. One doctor cannot know everything about everything.
I alternate between two oncologists and a nurse practioner in the same office. I also keep in touch with my former oncologist who is now practicing medicine in Asia. All three doctors have different knowledge bases, experiences and have worked with different patients, so they each have something very valueable to contribute, suggest or share with me. The nurse practioner is also very helpful, because she has a wide knowledge base. I learn so much every time I see them.
It also helps to help cover all bases and make sure nothing is left on the table or forgotten.
The chemo sensitivity testing seems like a good idea too.
I think it can be done if there are several skin mets are one large skin met.
If your insurance won't approve Pertuzamab you may be able to get help from the drug company that makes it or a cancer organization that can put you in touch with an organization that provides financial assistance or grants to patients for medicines.
Hang in there Sheila. Take good care of yourself.
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ElaineM
12 years and counting
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Old 06-27-2012, 12:03 AM   #2
sassy
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Re: taken off Taxotere..trying to remain positive

Sheila,

Keeping you in my thoughts and prayers. I just know there is another answer coming your way.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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