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Old 06-05-2012, 05:52 PM   #1
caya
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Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
Re: Help and advice please

Hi Nancy,

I am in Canada, we are fellow commonwealthers!

I was node negative, but like Tricia, highly triple positive. I have done 2 1/2 years Tamoxifen, 2 1/2 years Femara, for the 5 year total. I am due to finish Femara in July. Two years ago I felt like you - very anxious about stopping. But now I cannot wait to stop and get on with my life. At my last visit my onc. said that for me, there is no benefit in staying on Femara any longer - in fact, because of my osteoporosis and other issues, it would do more harm than good. I am thrilled to be going off it, I intend to have a big celebration the day I take my last pill.

A friend of mine took a Femara "vacation" for a few weeks, and told me she could not believe the major difference (for the better) in her QOL. Aches and pains disappeared, fatigue was replaced with energy - I am hoping this will happen to me too. I feel that with doing a MRM, chemo, Herceptin and the Tamoxifen and Femara, I have done all I can.

I am at peace with this - I'm 5 1/2 years out now, I want to go forward.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 06-06-2012, 03:39 AM   #2
nancy dip
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Join Date: Jun 2007
Posts: 49
Re: Help and advice please

Hi Girls,

thanks for the quick replies.
I live in Glasgow and will check out your forum, Trisha.

nancy
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Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
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