Swollen eyelid, face and neck..in the morning

Elizabethtx · 03-25-2012, 03:10 PM

Sorry to hear you are having these strange symptoms. A phone call and visit first thing to your doctor is in order! Praying you get information and relief on Monday.

StephN · 03-25-2012, 04:22 PM

Hi K -
Not fun, such symptoms.

I had something like what you dwescribe with my blocked veins from my port-a-cath.

Do you still have a port? If so, you may want to have a CT Venogram to check for blockages.

My port was working just fine, but my veins were not liking having a foreign thing running through and starting to surround it causing some serious narrowing of my vessels.

Mine also got better as the day wore on. Affected my eyes as well.

fullofbeans · 03-26-2012, 11:50 AM

It has been dx as superior vena cava obstruction which needs to be comfirmed at 9am by a ct scan..

Can be life threatening i wonder what it may mean for the trial..

StephN · 03-26-2012, 06:31 PM

Dear K -

Your symptoms sounded similar to mine. My vena cava was quite narrowed and an angioplasty was performed to open the passage with the balloon.

This should not affect the trial unless they need to remove your port and a port is required. I finally had mine removed, and now if I ever need another port it will have to be of the trans-thoracic type used for children.

The angioplasty was a day procedure and I had no after effects, besides my bodily fluids being able to drain!