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Old 01-25-2012, 11:48 PM   #1
Adriana Mangus
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Join Date: May 2006
Location: California
Posts: 668
Re: Dying of other cancer...

Jackie,

First of all my condolences for your loss.

I totally agree with you. Although I tested negative for the BRCA 1 and 2, I have to be vigilant for other type of cancers.

On my father's side all of my uncles, ----his brothers either died of stomach or colon cancer. My father passed away from a stroke at the age of 79 and was healthy almost to the end of his life until the stroke took him almost immediately.

I am seeing the obgyn and internist for ovarian/cervical and colon cancer . The obgyn keeps telling me that I will "never" develop ovarian cancer. I wish I had seeing her before 1994, perhaps she already knew (you know crystal ball), I had breast cancer before I even discovered myself. SHe's a nut!! She eventually signs the referral for the transvaginal ultra sound but each time I have to fight her. Oh well.

The internist does not mind seeing me, I have a strong patient-doctor relationship with my primary doctor and since she's the one referring me, I have never had a problem with the internist. He just writes the little paper and I get schedule for the colonoscopy.

We are the ones responsible for our health, and WE must remember that no one cares about you, but yourself.

Take care,

Love,

Adriana
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 01-29-2012, 03:26 AM   #2
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
Re: Dying of other cancer...

Another cancer incident of my college basketball team...

The Captain a year behind me e-mailed us pictures of Houtzu's funeral. Included was a picture of her and another teammate who had also attended the farewell service. This teammate, a college instructor in the midst of working on her advancement dissertation, is also a breast cancer survivor (surgery in 2006). Her mother passed away two years ago from stomach cancer.

So far, out of the 12 members of the 1982 team, we've had 4 cancer incidents - all gynecological cancers. All three members with breast cancer (one also had ovarian cancer, and I've had life-long brain tumors) are alive and well (8 1/2 years with recurrence - me, 4 1/2 years, 5 1/2 years respectively.) All four of us have family members/relatives who have been diagnosed with cancer (lung, NHL, Colon, and Stomach) - makes me wonder about the HNPCC connection: http://ghr.nlm.nih.gov/condition/lyn...H0001895/drome

This is pretty close to the statistics of cancer incident in Taiwan http://www.asiatoday.com/pressreleas...er-rise-taiwan except that we've all just passed the half century mark (instead of the cut-off age - 74 - used in the statistics) None of us has the risk factor of alcohol use, betel nut consumption [major cause of oral cancer in Taiwan] or obesity. Hopefully we've matched the statistic and no more teammates will be diagnosed with cancer in the future.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
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Irrtbl bowel 1'09
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BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-01-2012 at 12:01 PM..
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