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12-30-2011, 03:44 PM
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#1
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Senior Member
Join Date: Dec 2011
Posts: 26
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Re: Pictures of Herceptin Rash
Choyces,
Keep a good eye on it. Make sure you let your onc know.
Thanks for everyone's support. I'm going to try herceptin again on Friday. We will be at the cancer center the whole day so we are right there in case of a worse reaction. Many are nervous as I am. You can keep me in prayer at 8:30 next Friday morning. Pray that no tongue swelling or difficulty breathing.
Allergist is going to talk to Harvard this week to discuss this. Hopefully they will have some answers too.
I also start RADs Wednesday. Busy week.
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07-25-2012, 05:35 PM
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#2
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Guest
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Re: Pictures of Herceptin Rash
I am getting a rash around my port and it spreads. Don't know for sure what is causing it, but I am getting Herceptin through that port. My radiologist prescribed an antibiotic, and I used Metrogel (insanely expensive, but works on other rashes I get). Not sure which worked, but it cleared up. But, this week's Herceptin brought it back again. The rash is quite itchy, and reddened. When I let it go untreated the first time, not knowing what it was, it got very dry and slightly bumpy, and it spread from a dime size spot to a teacup size with a trail along the path of the port tube. I do take Singular, but am not supposed to have Benedryl.
I'm not a doctor, so this is just an OTC suggestion. If the area is fairly limited, I'd try an OTC anti-itch cream and see if that works before going to something prescribed. It would be less problematic than steroids might be. I already had Metrogel from a previous breakout totally unrelated, so I used that and Metasone (think that's the right spelling), both are prescription, but both helped a lot.
The radiologist took a picture, I'll see if I can get a copy and post it here.
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07-25-2012, 06:25 PM
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#3
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Re: Pictures of Herceptin Rash
Hi there-
Sorry for the discomfort. I had a rash for many months...but I cannot remember if it was from Taxol or Herceptin (sorry). Here is a photo. It was ALL over my body. Topical sterioid, applied carefully, was very helpful.
I hope you feel better soon,
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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07-25-2012, 06:29 PM
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#4
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Re: Pictures of Herceptin Rash
Sorry. One more. Not sure if these really show it across my chest and even all over my face. But I hope they will help you.
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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07-25-2012, 07:24 PM
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#5
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: Pictures of Herceptin Rash
Thank you Kroesen and Maureen for the photos. I have a very very mild rash, thought it was cancer spots. Its nice to know the reason for it. Am off herceptin now so hope it goes.. Wishing you both the best of luck in getting rid of this pesky rash.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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07-26-2012, 06:17 AM
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#6
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Senior Member
Join Date: Dec 2011
Posts: 26
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Re: Pictures of Herceptin Rash
Ladies,
They did figure out what was causing the rash all over my body. It was the heparin that they use for the port. You may want to ask them to test you for a HIT. I had that first and then my numbers were better and they started me on it again. Rash got a lot worse.
Allergic reaction to heparin is very rare, but worth a try. I'm no longer taking it, no rash, and have two more treatments of herceptin to go.
Good luck  |
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