Decadron Wean

[joyce lutz]

Steph - my daughter takes 3mg in the a.m. and 2 in the pm around 4 or 5:00. She doesn't take it every 8 hours. She never has in fact. It's always been a dose in the a.m. and another in the p.m. ALWAYS the docs want her to wean off of it quicker than she can tolerate it and so she sets her own wean schedule slower than the doc's. She didn't have any of these issues until she began to wean down from the 24 mg she was given for 8 days in the hospital before the surgery. Then about day 14 she had them and they have steadily gotten worse which is why I thought it was from the wean down but then I saw many others who have been on it long term (she's been on it 1.5 years) and they exhibit these symptoms too. We are just so confused.