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Old 11-30-2011, 04:45 PM   #1
Deb33
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Join Date: Feb 2011
Location: San Diego, CA
Posts: 133
Re: Xyloda

Hi
I took Xeloda for 2 months along with Adriamycin and Herceptin - weird combo but was apparently what I needed. My dose was one week on and one week off.

I was warned about the hand/foot syndrome and went overboard - Uddercream throughout the day, no hot or cold water, as little friction as possible, comfortable shoes ALWAYS. I also got 2 B12 shots each week - a few days apart. My NMD found a few studies where B12 is involved to diminish the hand/foot problems. I never experienced any issues other than some burning. I would get an upset stomach within an hour of taking it but if I kept some starch in the meal I did better (rice/potato/bread). I was also told to wear gloves and socks at night and lasted one night - couldn't handle wearing them.

All in all, you will probably find it mild compared to the other stuff you have been on. Good Luck.
__________________
11/19/10 Identified swollen lymph node
1/24/11 Mammogram showed microcalcifications - no mass
2/4/11 Diagnosed ER/PR- HER2+++
2/23/11 Began TCH protocol every 21 days 6x
5/23/11 Ultrasound of originally diseased lymph node shows normal
7/25/11 Lymph node dissection - 8 of 14 show disease
7/29/11 Double mastectomy with reconstruction (expanders)
8/29/11 Begin follow up chemo - Adriamycin 4 treatments every 2 weeks and Xeloda. Self inject Nupogen shots
1/6/12 6 weeks of Radiation finished
2/13/12 Last Herceptin/remove port
3/27/12 PET/Brain Scan NED :)
8/15/12 Final reconstruction - hello nipples, good bye expanders
9/14/12 Rejected implant/infection. Implant removed
5/6/13 Latissumis Dorsi surgery left side with expander

PS - my photo was taken 5 days after my double mastectomy surgery and 6 weeks after my TCH was completed
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