Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
![Reply](http://her2support.org/vbulletin/images/buttons/reply.gif) |
|
11-01-2011, 11:34 AM
|
#1
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
New Campfire
Hi,
Our old campfire was closed by Post due to spammers.
http://her2support.org/vbulletin/showthread.php?t=51914
This is unfortunate, because we lost our place to relax by the campfire or hang out and spend time with each other. Link to old campfire.
http://her2support.org/vbulletin/showthread.php?t=37483
Since the old campfire was a popular place over the years Bill and I decided we need a new campfire.
I found this nice new spot in a beautiful forest near a lovely lake for everyone (except spammers) to enjoy.
I am starting to move the smaller things today and hopefully Bill will follow with the bigger things, so we will be just as comfortable as we were before.
Please come and help me build the fire later today if you have time.
Feel free to drop by to relax by the Campfire if you need time out from your busy schedule or to spend time with friends there. It is open 24 hours a day 7 days a week.
|
|
|
11-01-2011, 11:47 AM
|
#2
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Re: New Campfire
Thanks Elaine & Bill! Great idea. The old spot was getting a little trampled anyway.
I have some dry apple wood I can bring to add to the woodpile.
So, anyone who is feeling a need for sympthetic company, needs cheering up or has a good joke or story to share, follow the HER2 signs down the path to the campfire site.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
11-01-2011, 09:03 PM
|
#3
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
Thanks for the applewood Steph. It will help keep the fire going. Also thanks for making the her2 sign, so our members can find the new campfire.
I am leaving a thermos of green tea and a few snacks for those who spend some time warming themselves by the campfire tonight.
|
|
|
11-05-2011, 11:23 AM
|
#4
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
I thought I would bring my breakfast down to the campfire and relax by the fire on a lazy Saturday morning. Anybody want to join me for some cereal, fruit and coffee?
You guys are welcome to bring the scrabble board over here and play by the fire where it is nice and cozy.
Last edited by ElaineM; 11-05-2011 at 11:44 AM..
Reason: addition
|
|
|
11-06-2011, 01:51 PM
|
#5
|
Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
|
Re: New Campfire
I brought some pinecones and pistachios. Both are fun to toss in the fire because they burn really pretty. Of course you eat the pistachios first then just toss in the shell.
by the way does anyone know what time it is? All my clocks say different things ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|
|
|
11-06-2011, 02:29 PM
|
#6
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Re: New Campfire
I can bring some pinecones too! Good idea, Chrisy. Better than tossing them in our yard waste bin.
I resent most of our clocks before bed last night, so we would not sleep in so much like last year when I forgot!
Sorry I missed breakfast yesterday, Elaine. Had too much garden cleanup to do while weather is holding.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
11-15-2011, 10:37 AM
|
#7
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
I brought my breakfast down here to sit by the fire and warm up. I brought some Portuguese sweet bread to share. It is very popular in Hawaii.
I am glad to be back online, but I have alot to catch up with. I had problems with the internet server for almost a week. Eventually I will be changing internet servers, but being online makes it easier to look around for a new provider.
|
|
|
11-23-2011, 10:30 PM
|
#8
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
I just dropped by to sit quietly the night before Thanksgiving and think about my blessings.
I will leave some homemade cranberry sauce in the cooler and some warm squash and pumpkin soup by the fire for whoever drops by. Sorry, no turkey. I am vegetarian. Smile.
|
|
|
11-30-2011, 10:37 AM
|
#9
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
Bill's birthday cake. Enjoy
|
|
|
12-15-2011, 05:07 PM
|
#10
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: New Campfire
Wow, what a nice new campfire. You gals have that thing raging. It feels really good, warmin' me bones just right. Elaine, thanks for that awesome birthday cake. I know how much willpower it took you lasses not to nip into it while I was away, but here, let's slice that thing up and pass some around. I love the cracklin' of a good fire and the spirited chatter of good company around it. Here's to all of you!
__________________
For Nicola
|
|
|
12-16-2011, 11:50 AM
|
#11
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
Ah that cake was delicious. Good to have you around the campfire again Bill, especially since you built our first one.
I am leaving some "kicked" up oatmeal and coffee on the fire for all to enjoy around the campfire this morning. I have been sitting here relaxing by the fire and eating some oatmeal and having my morning coffee.
|
|
|
12-16-2011, 02:52 PM
|
#12
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
Re: New Campfire
Thanks, Bill. Here's a belated "Happy Birthday!"
[Special thanks to Elaine who brought the cake. Glad you've kept it fresh in the freezer! ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif) ]
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 12-16-2011 at 02:55 PM..
|
|
|
12-17-2011, 05:40 AM
|
#13
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: New Campfire
Elaine,
You were not kidding about the "kicked up" oatmeal. Very good !
And your coffee was perfect.
Many thanks.
Karen
|
|
|
12-17-2011, 12:13 PM
|
#14
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Re: New Campfire
I will try to come by for a break between getting cards out and the last few gift decisions ... I have some delicious fresh caramels from France to share. The soft kind, easier on your teeth!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
12-18-2011, 07:11 AM
|
#15
|
Senior Member
Join Date: Jul 2011
Posts: 954
|
Re: New Campfire
Here's a cartoon to pass around to you guys at the camp fire. ![](http://www.glasbergen.com/wp-content/gallery/fitness/fit9.gif)
|
|
|
12-18-2011, 10:58 AM
|
#16
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
Cute !!
I can relate. I have two broken toes at the moment.
|
|
|
12-26-2011, 03:43 PM
|
#17
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
I just threw some more logs onto the fire to keep you guys warm if you want to relax by the fire for some down time.
I am also leaving a thermos of hot chocolate for whoever wants to keep even warmer.
|
|
|
12-26-2011, 05:46 PM
|
#18
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: New Campfire
Thanks Elaine. I could really use warmth and hot chocolate right now. It is cold in Atlanta!
|
|
|
01-17-2012, 07:25 PM
|
#19
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: New Campfire
Hi Gang! Thought I'd drop by to say hello and warm up a little bit. Here, let me toss a stick or two onto the fire.....you know....those sparks... shootin' up there towards that quarter moon remind me of the time when I was camping out in Arizona.... and spotted that shapeshifter just at the edge of our clearing. Have I told that story before? Maybe we should sit around the fire here and swap stories. I would tell it now, but I don't want to tell it if I've already told it. Here, let me stick my little tinfoil packet of almonds and walnuts next to the coals. I'm gonna lay back a bit and let my mind wander off and contemplate God, Man, our places in time and space, and the nature of all things, both real and imagined. If I doze off, someone keep an eye on those nuts and help yourselves when they're nice and crunchy.
__________________
For Nicola
|
|
|
01-17-2012, 08:17 PM
|
#20
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: New Campfire
I ate some of the almonds and walnuts when you were napping, but I did leave some macadamia nuts for you to snack when you wake up.
Good idea about sitting around the campfire sharing stories. Don't worry about telling the same stories. I am sure there will be folks who haven't heard them yet. We all have stories to tell since we all come from different backgrounds and have had different life experiences.
We need to have a weekend or at least a one day camp out. I will bring the marshmallows, coffee and tea for sitting around the campfire and the fixings for a delicious breakfast if others can bring the lunch and dinner fixings.
Last edited by ElaineM; 01-17-2012 at 08:18 PM..
Reason: correction
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is On
|
|
|
All times are GMT -7. The time now is 01:41 AM.
|