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Re: Important re Tykerb alone in Adjuvant setting
CECW,
A scan would be "more stress"? Who are these people who think we do not have stress anyway??? I was not in the Altto study for long because of reaction to tykerb, but while I was in it, I was not being followed with scans on a regular basis. However, I was told if I had a persistent symptom, then I would get a scan. I quoted the letter I got, which advised that persons who had already finished the tykerb only arm should talk to their doc about getting herceptin. I believe you should insist on this. We go in trials to help out, if the trial has an unexpected result (tykerb not as effective) we should then get the standard treatment (herceptin). Don't wait for a letter. Tell you doc you have heard this -- I'm sorry I got rid of my letter after reading (since I've now had a year of herceptin) because if I had it I would fax or pdf you a copy.
Estelle
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Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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Hybrid Mode
