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Old 08-27-2011, 02:09 AM   #1
Dianedack
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Smile Re: Gamma Knife A Success but more brain mets

Hi Courtney Been thinking about you all the time. What bad luck with the brain mets. I am suffering what they think is Radiation Necrosis from the gamma in March so I have lost right sided use of my arm & leg what a pain it is!! I agree with you on WBR this is a last resort for me also. Hopefully this will be your last session and no more mets. Are you on chemo as well?

You can beat it

Lots of love

Dianex
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adenocarcinoma ductal grade 3 DX Oct 2001 2mm grade111. Level one two out of four lymph nodes positive. ER strongly positive PR strongly positive HER2 staus not known. Chemo FEC six courses Radiotherapy course. Arimidex 5 years. Recurrence April 09 Liver, Lungs & Bones May 09 Liver Biopsy ER status changed to negative PR status changed to negative. HER2 now+++May09 Docetaxol 6 cycles Herceptin and Zometa added.Disease stable for 17 months Scans Jan 2011 one of the tumours in right lung has grown significantly scan due in April 2011 to check lung tumour. Current treatment Herceptin & Zometa February 2011 unwell so hospital. DX inoperable Brain mass 11x8mmx12mm left of midline. from lungs and heart March 2011 Gamma knife treatment to brain met.March2011Tykerb/Xeloda/Zometa
March 2011 Severe allergic reation to Tykerb July 2011 New met in lymph glandineck.July2011Navaline/Herceptin/Zometa
August 2011 Necrosis in brain
Herceptin/Zometa Oct 2011 considering Avastin for Necrosis
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Old 08-27-2011, 05:44 AM   #2
Jackie07
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Re: Gamma Knife A Success but more brain mets

Hi,

Brenda has given you good advice. (#9)

GKRS is quite safe. Since it's a very focused radiosurgery, the hidden seeds could sprout because they've never been exposed to the radiation.

I would think that as long as your doctors think it's safe, you can continue to zap any new mets with GKRS or other forms of focused beams.

It does feel kind of 'old' when you keep hearing about new mets. But hang in there. Your doctors (including the 2nd opinion doctors) will figure out the best strategy for you soon.

Sending you good vibes.
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Old 08-27-2011, 06:16 AM   #3
MJo
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Re: Gamma Knife A Success but more brain mets

Invasive weed seedlings, that's what they are. It sounds like the gamma knife "pulls" them out one by one, while the Herceptin is the weed killer. I like the idea of strengthening the weed killer, like Joan and Becky suggest. Sorry if that sounds too simple, but I try to frame cancer in terms I can understand. We're not doctors here, but there is an amazing amount of knowledge on this board.
Stage IV CAN become NED.
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