Navelbin--hope I spelled it right.

[Dianedack]

Yes I am on Navelbine and Herceptin/Zometa. I am not really enjoying this chemo treatment although currently it seems to work I have had two rounds of two weekly doses and then a two week break. I think I would prefer it three weekly which I will discuss with doctor. I dont generally do well with side effects of chemo treatments so maybe I am just unlucky. Anyway if it works that is good. Good luck with the treatment the side effects are managable.

Regards


Diane

Hi
I have just had my second Navelbine @ 75% & 85% respectively. I was previously on Xeloda and Tykerb (at great expense) for two and a half months, which did not work and the mets progressed in my lungs. The year of Herceptin previously, evidently did not work. My Onc stated that if Herceptin did not work "it" usually will return in one year.
In asking the Onc why they didn't give a cat scan to those after the year of Herceptin, she she said they don't like to give too many cat scans. And yet I have had two cat scans in three months!!
Go figure. I think it would be good preventative.

Gail

[D.W.]

Gail,

Thank you for responding to my message, Gail. My onc. schedules me for a CAT scan every six months. If the brain tumors are really tumors and not necrosis; my onc. will have to change up my meds. We won't know until the surgery. It will be Sept. 20th or 27th.

Take care,
D.W.

Hi
Just finished my fourth scheduled treatment. (At 85%) so far I've had the tiredness for the four days after, my neurapathy has increased from my previous run with taxal three years ago (that's why my oncol hasn't increased the dosage to 100), and now I have the mouth sores.
What has anyone done to help them, I don't see my oncol for another week.

Gail

Hi Gail . Thanks my wife went for 2nd cycle of navelbine only thing sha has acute back pain .. hope her mets are under control may be after 3 or 4 cycles they will again examine let us see and hope for the best.. thanks for yur update .. I will also keep update on this post..

Khozema

[Jackie07]

Gail,

You should be able to call the oncology nurse to get a prescription called in to the pharmacy. There are different stuff you can use. When I had real bad mouth sores I was given the 'thrush' - a mix of Malox, Lidocaine, and Benedryl locally made by the hospital pharmacy.

The nurse might need to see you first. But either the oncology nurse or an oncologist on-call should see you immediately and give you the right advice.

http://her2support.org/vbulletin/sho...ht=mouth+sores