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Old 07-25-2011, 07:57 PM   #1
tfabre
Senior Member
 
Join Date: May 2010
Location: New Roads, LA
Posts: 35
Re: Cancelled reconstruction

I am so sorry and understand your frustration. I had initially tried to have my DIEP flap closer to my home, and after talking with the plastic surgeon for 30 minutes in his office, he finally admitted that it is "Out of his comfot zone". Thank goodness I didn't settle for implants (which he wanted to do), and decided to look further.

I had my Diep flap done in New Orleans with Dr Ali Sadeghi, and what an amazing job he did!!!! Dr. Alan Stolier did the mastectomies. I couldn't be happier!

I know that I do not know all of the circumstances for your surgury, but as a nurse, I do know that this procedure is a very long microsurgery. Not all hospitals (and plastic surgeons) can offer this procedure. It takes ORs equipped for Microsurgery, OR teams (multiple doctors and nurses) that can coordinate their schedules and operating rooms that can be tied up for these lengthy procedures. These may not be things that staff haven't explained completely to you.

You may just need to have a discussion with your surgeon, or his nurse, to better understand. If your gut tells you to find another surgeon....DO IT! Always follow your instincts. Things happen for a reason, most often for the better!

Hang in there!!!!
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Toni

Found lump...Oh, crap!
Dx 4/29/10
Invasive Poorly Differentiated Ductal Carcinoma. BRCA 1&2 no mutations(although 2 cousins also are HER2+)HMMM....
Stage IIB, G3
ER/PR -, HER2+++
5/11/10 Lumpectomy/Axillary node dissection/Mediport placement
Tumor 3.5cm, 1/15 nodes + Both Sentinel nodes negative!
6/24/10 - Started TCH.
10/14/10 - Finished chemo...yea!!!!!
12/27/10 - PET scan and MRI-NED!!!!!
03/09/11 - Bilateral Mastectomy and reconstruction (DIEP Flap)
03/16/11 - NED! Path report negative!
6/9/11 - Revision of both breasts, and port removed. Two lumps removed...both benign!
6/23/09 - LAST HERCEPTIN!!! Wohooooo!


My son Tim and his wife Nicole just had their first born...a son, Brayden...my first Grandchild! My daughter Hanna is working her way through college, and I am so proud! God has blessed me.

Update...as of 10/2013...still NED, and my son and daughter-in-law just had identical twin girls!!! They have blessed me with 3 beautiful grandchildren in 27 months!! Haha!
My beautiful daughter, Hanna, is still working toward her degree and working full-time.

God is so good:)
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Old 08-29-2011, 03:21 PM   #2
alicem
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Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
Re: Cancelled reconstruction

I also had DIEP surgery, but in Houston. If for some reason NOLA does not work out, I would highly recommend Dr. Aldona Spiegel. This is the only type of surgery that she does and she has done thousands by now. Her staff is excellent and she hand picks the surgical nurses as well as the nurses that care for her patients while in the hospital. If they don't meet up to her standards they are gone. She has a wonderful website that describes the procedure in depth along with before and after pictures:

www.breastrestoration.org

Good Luck! Hope this helps!

Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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