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Old 07-22-2011, 11:56 AM   #1
BonnieR
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Posts: 2,210
Re: Bilateral mastectomy support group

Since this thread is reactivated, I thought I would take the opportunity to tell you about my latest and BEST solution to the prostheses and uncomfortable bra situation. I recently discovered COOBIE BRAS. They are the most comfortable things! They are one size fits all, believe it or not, and have very small inserts so that the result is to look like you have small curves. Enough to not feel totally flat. They come in very cool colors. Good to wear around the house or as a sleep top. I have worn mine in the pool. Google Coobie Bras. I saw them originally in a Fresh Produce clothing store.
So happy to have found a solution!
Keep the faith.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 07-22-2011, 04:32 PM   #2
Debbie L.
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Re: Bilateral mastectomy support group

This is always an interesting topic because there are so many right answers -- and it's a different answer for each of us -- one that only we can figure out for ourselves.

But it does help to hear how each person handles it.

For me, one of the biggest advantages to being flat-chested is not wearing a bra. I did initially try some prostheses but it felt wrong for me. I felt costumed and MORE aware of my loss, not less-so. I never wore them out of the bedroom (although I tried, repeatedly).

But that was a long time ago (10 years). Now, I rarely give any thought to my chest. It's just how I am. If I look a little odd in my tank tops (big hips and belly) -- oh well. It's hot here and I've always been more about function than form.

But I do have one issue. I am never sure what to do when people are naked. For myself, I am okay with being naked in front of others, in the appropriate setting. But I know that some people are exquisitely sensitive to scars and mutilations -- to the point of feeling ill to just look at such. And I'd hate to ruin their day.

In locker rooms, this is less of an issue because it's usually not a big deal to just turn away when showering/changing, etc. But what about hot springs and nude beaches? I do not frequent them that often, but occasionally. So far, I've chosen to wear enough of a top to screen the scars, even though it's obvious what the top is covering.

What do others do, in this instance? Do you assume that people who are able to handle nudity themselves will be more able to handle whatever novelty-of-body is presented to them? Or do you cover up?

Debbie Laxague
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3/01 ~ Age 49. Occult primary announced by large (6cm) axillary node, found by my husband.
4/01 ~ Bilateral mastectomies (LMRM, R elective simple) - 1.2cm IDC was found at pathology. 5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP's B-31 adjuvant Herceptin trial (no Herceptin, inducing a severe case of Herceptin-envy): A/C x 4 and Taxol x 4 q3weeks, then rads. Raging infection of entire chest after small revision of mastectomy scar after completing tx (significance unknown). Arimidex for two years, stopped after second pathology opinion.
2017: Mild and manageable lymphedema and some cognitive issues.
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