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Old 06-29-2011, 04:38 AM   #10
mamacze
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Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
Re: Her2 Serum ?


Hi Kim,
I just got back from vacation with the kids (my LAST trip to Disney World!) and I am glad I stumbled on this post. I stopped Herceptin last month4 years. Before I stopped, I got a 2nd from an oncologist at Sloan. She said in her experience; her ladies who respond to Herceptin then take a holiday; typically recur (and need to go back on Herceptin) within 8 weeks to 4 years. My oncologist decided to monitor me with the CellSearch Circulating Tumor Cell Test. I am expecting results from my first test this week. I am wondering if it would be helpful for you to have this as a back up test ... it would be interesting to see if it too shows an elevation. Keep us posted. Fingers and Toes are crossed for you!
Love Kim from CT
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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