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Old 06-08-2011, 02:46 PM   #1
yanyan
Senior Member
 
Join Date: Apr 2011
Posts: 403
Re: TCH- How did it work for you

Hi, Snolan. I am still recovering from surgery. But i am happy with the look overall. My plastic surgeon took more tissue and fat for the cancerous breast, knowing radiation will be needed. I have a long scar on the back. He said short incisions tend to creat dog ears. Different from what i saw on the website, my back incision is horizontal, one straight line across. I do feel some tightness on the back, not much pain though. It hurts sometimes and feels like a muscle pull. For reconstruction options, you can check on http://www.breastreconstruction.org. I found this is a great website and i got lots of useful info from there and that helped a lot with my reconsturction decision. If you are having lattismus flap reconstruction after radiation, you are likely to have a different look since they might have to take out some of the radiated skin. I am surprised they are doing radiation for stage 1.
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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Old 06-09-2011, 11:49 AM   #2
snolan
Senior Member
 
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
Re: TCH- How did it work for you

I had to have the radiation for the DCIS, it turned out to be up against the skin and down to my chest wall. The biopsey didn't show that, otherwise the surgeon said he wouldn't have put the expander in and I had the skin saving tech.Surgeon recommended removing the skin but I elected not after talking with radiologist, she felt that radaiation would take care of it. Nothing went by the books which was what was frustrating. I am very prone to making plans on how things are going to go and when they don't I got very emotional. I am woundering how the results will look since I will have the implant on the R and the Lat muscle on the L.
__________________
dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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