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Old 04-10-2011, 03:58 PM   #1
Trish
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Location: Melbourne, Australia
Posts: 434
Re: I'm Taking Care of My Mom

I too hope the nurse can come and talk to her and perhaps allay some of her fears.. She really needs to feel she has some control and I'm sure most people would feel the same way in her situation. Don't feel obliged to come online and reply-you've got more important things to worry about. I hope you are finding ways of sustaining yourself during this difficult time.
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 04-11-2011, 08:02 AM   #2
Merry
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Re: I'm Taking Care of My Mom

Hey Trish....can I ask you what kind of dog is in your pic? It's cute and wooly looking, lol.

I can understand Mom's fear a little bit even tho she knows the outcome of this damn cancer racing thru her body. But it's not like Hospice is a death sentence. That's already determined. It sure would help me if Hospice came to "spell" me so I could just go out and not worry about rushing to do things and get back home. She doesn't see it that way, how it would be a relief for me. I know that sounds selfish, but I just miss my husband, my dog and my desert....I begged her to go back to NM with me. We'd drive and have a ball. I have to "adopt" her whacky boxer anyway so she could live with us and we'd take care of her. And she'd see how her dog will get used to a new environment. But, I also understand how she doesn't want to leave her own home and familiar surroundings. I miss my own home and my yard and I have another boxer out west and I miss her too.
I'm also trying to convince her that an electric wheel chair would help her get around. I want her to get that scooter you can ride outside so she can go on walks with me. Her legs hurt for some reason and she gets too short of breath and her pulse goes way high if she tries to do too much. She has the lamest excuse for not getting a scooter....the guy has to come over and show her how to use it! WHAT? LoL He can show ME and I'll show her! It's so funny because when she first got a riding lawnmower she wouldn't let me teach her how to use it either. LoL I even got her a walkman so she could listen to her music while she mowed. So, I was the one who had to mow her huge yard, lolol..oh my Mama! She's got to be the best con artist, lol.
I wish I could get some decent sleep and rest. I'm mentally frazzled trying to care for her house, her yard, (if I don't do it she'll try and I can't let her do too much) the dog, her and my brother. He's 42 but Mom took care of him (and his gramma) all his life so he can't do anything for himself. Makes me crazier than I already am, lolol

I appreciate you "listening" to me. I don't have a place to go to "whine" about all of this. I'll tell ya what, I never knew what stress was til I came home to take care of my Mom in her last days. One of the docs said she'd not live past Christmas and it's almost Easter....she's a tough ol' bird! Again, thanks for letting me ramble...God bless you..and what is your dog's name? Does it have ears, lolol I'm sorry but it looks like a curly gray lamb....a cutie for sure!
Take care, peace, G
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Old 04-11-2011, 02:31 PM   #3
BonnieR
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Re: I'm Taking Care of My Mom

Merry, I just came upon your thread. Let me say you are a strong woman, handling the impossible with good humor.
My question is this: have you (or someone) actually told your mother how much it would mean to YOU to have Hospice provide some care? If it was put in those terms, she might be more willing to allow them around. It would be taking the scary focus off of her and making it sound more like a respite for you. Which it would be, of course.
Keep the faith.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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