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Re: Port Problems
I had not read the whole thread when I posted the following. I am so sorry you had to go through this. I am going to leave the post below because I believe that we all need to understand that if it doesn't feel right then it probably isn't.
My first port hurt the whole time I had it. It sounds much like the problems you have had. It never worked well. A few weeks into treatment, I had some swelling around it and intense pain after chemo. I was the squeaky wheel and I continued to be so and made them take it out and replace it. I have had my power port for almost 4 years and most of the time I don't even notice it. If it it not working and is hurting have them schedule you for a relpacement. The power port has not really been used for any tests yet. There is always areason but it has worked well for me. I also had a different surgeon the second time around. It made a huge difference. Quality of life is very important and you sometimes have to be pushy about this.
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
Last edited by fauxgypsy; 04-03-2011 at 06:35 AM..
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