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Old 03-27-2011, 10:49 AM   #1
kiwigirl
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Join Date: Jan 2010
Location: Matakana which is one hour north of Auckland, New Zealand.
Posts: 89
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Hi Anne. I did the trial and felt good the whole way through. At the time we all thought I was NED. I'm not sure what stage you are as you talk about the TDM-1 trial and others.

The only thing you need to be aware of is the vaccine does not cross the blood brian barrier. This is something I did not even consider for brain mets.

Good luck i still think it was a very worth while venture for me as I disease any were else.

Cheers
Jacqui
__________________
Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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Old 03-27-2011, 08:38 PM   #2
annfromatlanta
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Join Date: Mar 2011
Location: Atlanta, Ga USA
Posts: 6
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Hi Jacqui,

I am Stage IV. I had not even thought about the blood/brain barrier issue w/ the vaccine.That is certainly something to consider. Thank you for telling me about that. I conclude from reading your history that you did not have brain mets until after completing the trial. I'll bring this up with my oncologist.

BTW, I LOVE NZ! I visited a friend in Waihi on the East Coast and toured the S.I. about 7 years ago. Beautiful country!

Thanks for sharing your experiences.

Ann
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5/05-2 lumpectomies, cancer in 3 sentinel nodes,
9 nodes removed. HER2+++, ER/PR-.
7/05-bilateral mastectomy, reconstruction from thighs.
Port placement in chest.
7/05 to 12/06-Chemo: A/C, Taxol, Herceptin. NED. Port removed.
12/05-silicone implant.
5/08-METS to liver, bones, nodes in chest wall & around kidneys. Power Port placed in chest. Chemo: Xeloda, plus Zomeda, Herceptin.
2/11-CT showed new tumors inside pelvic wall. Largest 2 cm.
4/11-CT shows largest tumor had grown to 3 cm. Started T-DM1 trial.
6/11-CT shows largest Tumor shrank. Others stable.
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