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Re: Would you do WBR a Second Time?? Advice ASAP Please
Hi Everyone,
I'm so frustrated after reading all this. I was dx with brain mets in November. I had sudden onset symptoms of severe headache and vomiting and had to go to the emergency room. After an MRI I was told my only option was WBR and I had to start that day because of my symptoms! I had only four mets but was told they were in four separate locations and targeted radiation was not possible. In reading everything here I see that perhaps I might have had another option. I'm currently on Tykerb/Xeloda/Herceptin. My one month MRI after WBR showed largest tumor shrunk by more than 50%. I don't know if they are expected to continue to shrink with the Tykerb/Herceptin/Xeloda. I think on my next rad onc visit I will and med/onc visit I will inquire more about targeted radiation to zap whatever is left. I was NED prior to this reoccurence for about seven months. I appreciate any advice anyone has to give.
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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