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01-24-2011, 02:28 AM
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#41
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Senior Member
Join Date: May 2006
Posts: 157
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Re: Help! Brain mets besides lung mets
Hi, everyone,
I'm having surgery this week, and prayers, good vibes and good thoughts are welcome.
Thank you so much for your support. I'm blessed to be part of this family.
With all my love,
KarlaV.
Stephen, please read my answer to Kris thread, I explain why they want to do surgery.
Grace, I'm glad you are done with Gamma knife, that is what I wanted to do from the beggining. I hope you will get xeloda as well.
Joyce, I'm very happy your daughter will get xeloda with Tykerb, and I pray this combo will work for her.
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01-24-2011, 03:59 AM
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#42
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: Help! Brain mets besides lung mets
You certainly have my very best wishes and I will be thinking of you often this week. I read your plan in Kris's thread and it sounds like a really carefully reasoned one to me. I'm hopeful things will go well.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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01-24-2011, 09:01 AM
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#43
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Help! Brain mets besides lung mets
You are in my prayers. Hope to hear from you soon.
Amelia
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01-24-2011, 07:59 PM
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#44
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: Help! Brain mets besides lung mets
Prayers and all good wishes for you plan of treatment. Will be watching for good news from you.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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01-24-2011, 08:27 PM
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#45
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: Help! Brain mets besides lung mets
Kavy,
First, I wish you the best success with your surgery and gamma knife. You'll be paving the wave for me. I wish we could hold hands and do it together. I guess we are virtually.
Sending hugs and prayers your way.
Kris...
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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01-25-2011, 05:30 PM
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#46
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: Help! Brain mets besides lung mets
Hi Karla - From one brain mets survivor to another - I am holding you to the light and praying for an amazing outcome for you - it is possible. May they be able to remove and/or zap all of them successfully! Know that Gamma Knife is a highly effective treatment that can be repeated if necessary. Good luck with everything!
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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01-25-2011, 09:46 PM
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#47
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: Help! Brain mets besides lung mets
Hi Karla,
Thinking of you as you go through surgery this week. All of us our on your team and are wishing that this procedure is soon behind you.
Hugs,
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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01-26-2011, 12:05 AM
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#48
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Senior Member
Join Date: May 2006
Posts: 157
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Re: Help! Brain mets besides lung mets
Hi, All,
You won't believe my SURGERY UPDATE
My surgery was scheduled for today. Sorry I did not say anything yesterday, but I wanted to surprise everyone being back so soon. By the way things turned out, I was the one who was surprised.
I went to the hospital early this morning, checked in, went to the surgery floor, changed in my gown, anesthesiologist came, started the IV, and started asking questions. I told him about my 3 big lung tumors, that I have a mediastinal shift to the left, he also notice my cough. He CANCELED the surgery, because he needed further scans, chest surgeon cleareance for him to put the ventilator, because if something colapsed, it could kill me, and he was not taking the chance. I was in shock, in desbelief. He said they would reschedule the surgery for a week or so, bla, bla, bla. Went home very disappointed after all the preparation. Later in the day, got a call from Dr. Black's assistance saying that because that was a risky surgery, he was not doing the surgery anymore, but that I qualify for Gamma Knife. I'm still trying to make sense of what happened today. So now I'm scheduled for tomorrow to see the radiation neurosurgeon who does Gamma Knife, knowing that this is not the best option for me.
I wasted almost a month on research, doctors visits, steroids, got a round face already, the tumors are probably bigger, and I'm back to where I was a month ago. Great!
My oncologist has been of no help from the beggining. He suggested WBR, when I told him I wanted to do some SRS, he said brain was not his field, that the tumors in my lungs were stables, that he saw me in 3 months.
If the tumor in my cerebellum were smaller, I would be more hopeful, but after my reseach, I know I'm heading for trouble. I just pray that Gamma will work for me as it did for StepheN, but I think she is a lucky exception. I pray I will be too.
Love,
KarlaV.
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01-26-2011, 01:29 AM
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#49
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: Help! Brain mets besides lung mets
So sorry to hear about the delay but I'm hoping very hard that StephN is no exception and that Gamma Knife is in fact a good path for you. May it all turn out for the best.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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01-26-2011, 04:06 AM
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#50
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: Help! Brain mets besides lung mets
Karla - Such an ordeal to go through at the last minute before surgery. Thankfully the anthes. doc knew to use caution and postpone. Terrible disappointment to have to regroup and prepare for a different treatment. Like Trish, I'm hopeful that the gamma knife will be successful and zap all the brain tumors. Will be thinking of you and waiting to hear more news. pam
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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01-26-2011, 04:12 AM
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#51
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: Help! Brain mets besides lung mets
Oh Karla! This is not right! I can imagine how upset you are. I am not a specialist but Gamma Knife seemed to work for many so keep faith! I hope they can take care of you immediately. I am sending hugs and support. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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01-26-2011, 07:33 AM
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#52
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Senior Member
Join Date: Oct 2009
Posts: 84
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Re: Help! Brain mets besides lung mets
Karla - So sorry about the delay, but it sounds like it's for the best at this time. I understand the anxiety that goes along with waiting and being let down as my daughter and I have had a similar thing happen. So try to look forward to the next best thing which may be some type of SRS AND I would think about getting a new onc considering his attitude!
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01-26-2011, 11:13 AM
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#53
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: Help! Brain mets besides lung mets
Karla, I just want to wish you the very best, I really hope treatment works for you. It must have been so difficult to go home that day without surgery. Everything seems to move so slowly in cancerland. You are definitely due a lucky break. Thinking of you.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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01-26-2011, 01:25 PM
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#54
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Help! Brain mets besides lung mets
Karla,
I too was disappointed about having surgery rather than targeted radiation alone, but all has worked out so far.
The radiation oncologist said he could do only radiation if I wanted that but thought I would get better control with both surgery and radiation. 95%, as opposed to 50% with surgery alone and about 70% with targeted radiation alone. My tumor was in my front, left lobe.
Out of all my surgeries, the craniotomy was the easiest. There was some discomfort initially in the hospital because they wrapped my whole head extremely tightly in an Ace-type bandage. My hair was sticking out of the top. I looked like a cupie doll. They offered painkillers but I declined and just muddled through it. After two days they took off the bandage, and I had staples from the center of my forehead just above the hairline, down to about the middle of my ear. About two inches of my hair was shaved from my head in the same area. The rest of my hair was fine.
I was not given anti-siezure medication prior to surgery which is sometimes given prophylactically. I had the surgery at a major NYC cancer institute and they don't believe in it unless I was already taking that kind of medication.
I had to take a steroid (Decadron) for a month, and after a while it started to drive me crazy with nervous energy and difficulty sleeping. After about six weeks I started targeted radiation (IMRT) of five doses over one week. Fortunately, my radiation oncologist suggested I try the radiation without steroids. I think steroids are usually given for swelling, but he wanted me first to try without it.
Take a deep breath and let go. You'll do fine. You're in my prayers.
Hugs,
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
Last edited by Joan M; 01-26-2011 at 01:34 PM..
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01-26-2011, 01:43 PM
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#55
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Help! Brain mets besides lung mets
OH! Karla -
What an ordeal to get right up to the point where they are starting the anesthesia and have them back out. I can feel that frustration just reading the words.
But, now you have a chance to adjust your frame of mind and concentrate on Gamma Knife as something that will have great effectiveness for you too!
I assure you I am NOT an exception. I do believe your brain team was trying to give you what they consider the best chance for total control. However, since you have only the 3 spots, you are in a class of patient who stands a better than 70% chance of good control after treatment.
There was a study released around the time of my Gamma Knife which concluded that patients with HER2 positive brain mets numbering 3 or less (and less than 3cm in size) would have a 91% chance of total control. (My family prayed that the good Lord would take care of the other 9%.)
I have not searched for anything more recent, but that study bouyed up my hope for success such that I really had no second thoughts about going that direction.
My largest tumor WAS 3cm, so I was pushing the size range in that study, but it was not deep being in my cerebellum.
I am here to tell you that I now have SIX years of NED in my head since Gamma Knife. Six years from now you will be able to make that same statement!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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01-26-2011, 01:58 PM
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#56
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Help! Brain mets besides lung mets
Karla,
Sorry I missed your post about the cancellation, but it's good that the surgery was cancelled. Gamma Knife is less invasive and just one shot to do the job.
Steph's procedure worked out fine, and I'm sure that yours will too. My tumor was 2.6 cm, and surgery was considered better for tumors greater than 2.5 cm. Steph's tumor was close to that size at 3 cm, and perhaps since it was not deep, Gamma Knife was considered a very viable option. In my case, the tumor was deep, so the depth may have influenced the doctors' recommendation. Glad you nipped the WBR recommendation in the bud!
Let us know what happens.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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01-26-2011, 04:47 PM
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#57
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: Help! Brain mets besides lung mets
Karla,
That really stinks. You'd think the Drs. would have sorted all that out ahead of time. I just got the word it’s most likely brain mets. They can’t biopsy it because of the location, so we’re moving forward that it’s a metastasis. Truthfully, lets hold hands and do this together. I'll be waiting for you.
I just called to make appointments for the Gamma Knife.
I am rooting and praying for you. Hang in there. We can do it together.
Kris…
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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01-26-2011, 04:56 PM
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#58
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Senior Member
Join Date: Oct 2009
Posts: 84
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Re: Help! Brain mets besides lung mets
I swear, I just don't understand doctors! My daughter was asked to get two tests done for her brain mets and today the onc called and said not to get the 2nd one right now and to wait a week!! I'm like - what?? What are these doctors thinking when they order tests? Well, aside from that issue I'm wishing you all the best
Joyce
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01-28-2011, 12:14 AM
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#59
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Senior Member
Join Date: May 2006
Posts: 157
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Re: Help! Brain mets besides lung mets
Hi, Everyone,
Thank you all so much for your support and kind words.
I will have Xknife next Wednesday to zap the 3 tumors at the same time. If the tumors were smaller, I would be more relaxed, one good thing though is that the bigger tumors are not deep.
I will keep you updated about the Xknife.
StepheN, thank you for the information, and AMEN to your words. I will keep my hope as well.
Kris, I'm sending you a message in your theard.
Love to all.
KarlaV.
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01-28-2011, 12:58 AM
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#60
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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Re: Help! Brain mets besides lung mets
Good luck, Karla.
Here's some information about x-knife in case you feel like reading more about the procedure:
http://cornellneurosurgery.org/services/x-knife.html
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
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Last edited by Jackie07; 01-28-2011 at 01:02 AM..
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