Access to T DM-1

[schoonder]

Phil, I salute you!

[1rarebird]

Phil--Thanks so much for sharing your story and this information on TDM-1. It has given me a shot of optimism since I worry too often that I could be on the short road from early stage to IV. Sort of like waiting for the other shoe to drop. But your wife's success with this new wonder drug helps me trust that there will be excellent options for me in the future if the worst happens. Thanks again and best of luck to you and your wife.

Phil (aka bird)

[phil]

This is Phase III since last year ! The FDA says it must be tested against another combo, Tykerb/Xeloda, which is more toxic, and is no more effective . My wife was on it, and it was awful, her fingers split open, she would wear gloves with lotion inside, and it still hurt. GI effects, turned her palms and soles orange.
The FDA said " patients must exhaust all other options " ? My wife has ! They were just talking nonsense. It must be both a cost issue and just bureaucratic bungling. They will review in March, 2012 ! Criminal.