| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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10-23-2010, 04:58 PM
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#1
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Re: Joy Column
I coach a 7th and 8th grade girl's volleyball team. They adopted the name 'Don't Eat Crayons' mostly because they think it is funny to hear the other teams chant "Two! Four! Six! Eight! Who do we appreciate? Don't Eat Crayons!" at the end of the game. I mostly coach for my daughter Ma'ire. It is nice to have an activity that the two of us can share.
Our team hasn't been doing exceptionally well this year. Before today we lost all three of our matches. Not to make excuses, but our team is made up of all 7th graders or girls who have never played volleyball before. What the team has going for them is they are a great group of kids who have good attitudes and they try harder than anybody else.
Today we played the best team in the league. They are all 8th graders and all have played at club level. Before the game, the league director passed out a flyer to all coaches about running up the score and trying to humiliate overmatched teams. I kind of believe that the flyer was aimed at the other team when they played against us.
But a strange thing happened. Nobody told the Don't Eat Crayons team that they were supposed to lose the game. So the girls went out and played harder than anyone can remember 12 and 13 year old girls play. They dove for loose balls and they never gave up. And you know what? They beat the best team in the league! The other team was so upset they didn't give us a cheer and they didn't shake our hands.
Most of the time, life kicks you in the teeth, but you get back up. But if you are lucky, perhaps once in your life, you have a David and Goliath moment when you win one you had no business winning. I am very proud to be their coach, but mostly I am so happy that these girls refused to lose and that they learned that if they work hard and don't give up on themselves, then they can win and overcome remarkable odds.
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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10-23-2010, 07:06 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Joy Column
Love the name Dont Eat Crayons!
BIG SMILE.
I think we ALL munched on one at least a little bit ... I thought it was terrible, spit it out, and never tried it again.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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11-01-2010, 07:24 AM
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#3
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Re: Joy Column
Todays Joy: Just being alive.....
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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