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Re: Things you didn't know about me!
Laurel:
You are correct. My immune system is attacking vitamin B-12 in my blood serum and if I don't get vitamin B-12 I will lose all feeling and lose all muscle control because nerves will start dying. I am taking IVIG which is immuno-globulin taken from tens of thousands of people which shuts off the immune system long enough to absorb some vitamin B-12. IVIG costs about $3,500 a dose I am taking it every week. Hopefully the good doctors can find something else that works because it feels like I am losing this battle very slowly. Oh well, if they can at least slow thing down until they come up with a better way, then that will help. One doctor wants to try really small doses of vitamin B-12 in the hopes of sneaking under the immune systems radar. At this point, I am willing to try most anything.
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This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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