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Old 10-07-2010, 06:56 AM   #1
joletta
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Join Date: Aug 2010
Location: connecticut
Posts: 41
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Thank You Jackie and Steph for the helpful links.
Seattle washington is only offering stage 3b an 4 currently. Washington DC which is closer is offering a few diffrent kinds. You will be randomized 1 0f 3 diffrent ones they are offering. I believe it was a phase 1 trial. these pep tide vaccines seem to be dating back to atleast 10 years ago has any of them made it for a standorized treatment? After getting all the basic treatment does it really seem worth the risk to go through a trial....Is it possible these vaccines could actully bring on more her2 thus making it recur. I will not see my oncologist again untill oct 19..I plan on asking him these questions then. Mabe someone can respond that has been on this trial with good sucess and what vaccine did they get and are they getting close to approving it? does anyone know what the sucess rate is and how much % would it lower the recur rate..i guess that would also depend on what peptide they are on also or mabe since it is still in clinicals these # are not known yet?
seekin info
Thanks
Joletta
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dx- march 2010 age 35 stage 3a 4 of 9 pos. nodes
idc 2.2 ininvasive 7cm of dcis er/pr- her2+
april 15 2010 bilateral masectomy w/ tissue expanders
may 4 2010 port import
may 6 2010 clean ct scan & bone scan
may 11 2010 start 4 A/C (finish aug 3 2010)
aug 17 2010 start weekly herceptine & taxol 12xs (end date of oct 19 2010)
nov-dec 2010 30 radation
(plan permanent implants for feb or mar 2011)
continue on herceptine till aug 2011

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Joletta
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Old 10-08-2010, 03:49 PM   #2
Myra Lynn
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Join Date: Jul 2009
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Posts: 106
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Thanks Didi & everyone else,

First the good news: It looks like there is NED based on the results of the PET/CT scan. I will take a blood test in 2 months to make sure my numbers hold.

I will pursue the leads that all of you provided and see what I can learn about the clinical trials. I'll let you know what I find.
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Mammo 6/2/09
left breast biopsy 6/12/09
Bad news 6/18/09!
7/17/09 lumpectomy
Stage 1- 0.5 cm IDC , DCIS 25%
HER2 +++, ER+95%, PR+10%
8/09 Muga Scan 65
8/19/09 beg. TCH 1Xwk. 12 wks.
last chemo 11/26/09
IMRT - 33 txs. 1/12/10 to 3/11/10
Herceptin 1X week for 1 yr. Ends 8/10
Femara 3X wk. started 1/13/10-t
oo much pain in middle finger; switched to Arimidex 4/28/10 -permanently swollen, but no pain. Will continue for 5 yrs.
10/2/11 CT/PET scan due to elevated CA27.29 of 40.5.
Hot spot in irradiated area. Score goes down again to normal range. Subsequent blood tests go up and down until 2 tests in row at elevated levels of 42.5 & 45.7.
7/9/11 Intermittent vertigo. As a precaution contrast MRI to head. NED.
8/15/11 Erratic CA27.29 may be result of new auto immune disease, bullous pemphigoid (skin problem)
Off Arimidex for 6 wks. to see if trigger finger improves
Switched to Aromasin, 3X wk., but affected my liver.
On 2/23/12 taken off AI's.

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