I am on the Vaccine in Washington would like to chat with anyone on same vaccine

DiDi70 · 10-04-2010, 11:27 AM

Hello!

I hope that you're having a wonderful day. I am interested in participating in the Washington trial and would also love to hear from anyone who is on the trial regarding side-effects and hopefully, successes of the vaccine.

Thank you for being brave enough to participate in the trials and for taking us all one step closer to the cure!

Myra Lynn · 10-05-2010, 12:17 PM

Hi Didi,
I have just finished Herceptin and am waiting to discuss the results of a PET/CT scan. Assuming I am OK, I was interested in the vaccine trials. I think that being pro-active is a good idea for me and recent press from the Cleveland Clinic looks promising.

Are the trials in Seattle part of the same study?
Any information that clarifies this would be most appreciated.

DiDi70 · 10-05-2010, 02:03 PM

Hello Myra Lynn and group!

The vaccine trial in Washington requires the participant (patient) to be receiving Herceptin during the 6 months of their participation in the trial, so it looks like you won't be eligible for that one.

Unfortunately, I don't know anything about the Cleveland Clinic trials, but I would love to hear more about what's being done there. I will look around and see what I can find out.

What you might find useful is contacting the American Cancer Society where there will be a person available on the phone to direct you to the website that lists all current trials related to breast cancer. It will take a bit of searching, but the Cancer Society will help you. Also, there should be some help for you at your cancer clinic from a Social Worker who can direct you to the appropriate resources in your community to help you with the search.

I will let you know what I find out about the Cleveland Clinic.

Have a lovely day and congratulations on nearing the end of Herceptin! Good luck with your scan, I'll be thinking of you!

joletta · 10-05-2010, 08:02 PM

Hi,
I am interested as well Can someone send me the link on where to go..(Jackieo7 are you there..) I keep googling seatle washington her2 breast trial and its giving me feedback from 1998? Help want to make sure im viewing the right one/ Do they list specifically the pros and cons. Does any one have information on angel flights and hope lodge to save on costs of travel and is the treatment free because its clinical?
Definatly would be nice to be able to link up and travel w/someone else on site not to be alone if possible.
Hugs,
Joletta

StephN · 10-05-2010, 09:36 PM

Joletta -

Go to this link:

http://depts.washington.edu/tumorvac/trials.php

This is for the HER2 vaccine trial here in Seattle. It gives the name and phone number of the trial coordinator. You will see that there is more than one trial at this time. By calling, they can tell you which one would be best for you.

There is also a vaccine trial for HER2 beast cancer back east. Some of the gals here have done that one.

Now you have some "homework."