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Old 09-14-2010, 10:54 AM   #1
AIMhiGh
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Join Date: Aug 2010
Location: Washington, DC
Posts: 10
Re: Please post your two cents on Herceptin "side effects" real or perceived!

My 17th (last?) Herceptin teatment (1ce/3wks) was 6wks ago. It followed 8 dose-dense rounds of A/C-T each followed by Neulasta shots. The 1st treatment was concurrent with IV Reclast and caused 104+ fever and full-out flu symptoms. Radiation started 8wks later. All was interspersed with staggered mastectomies, an oophorectomy, reconstructive procedures & Femara so I haven't been able to make sense of what's caused what. With about 3 wks since the last Herceptin, I thought I'd share what's changed.
1. My nails are already noticeably stronger.
2. Mental clarity is definately improving.
3. Despite great angst about stopping treatment, my energy level has increased.
4. The above may be due to a 7% EF increase at 4wks post.
5. My eyes have stopped thier constant watering & stinging.
6. My nose has stopped that perpetual, tiny water-spicket drip.
7. The invisible but intensely itchy arm rashes have disappeared.
8. I think my eyelashes and hair (both of which regrew but not-quite-right) are getting stronger.
9. The bones in my feet no longer ache.
All that said, had it not been for the compromised EF I'd be doing my 19th treatment tomorrow, but I thought this might prove helpful to those evaluating their options and looking for causes to their SEs.
Good luck to all of you!
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AIMhiGh
Stage IIIb DCIS @39
ER/PR+ HER2 3+
8/15+nodes, 4.5cm tumor
AC/T+Neulasta (ev 2 wks)
Double Mast w/reconstr'n
Ov Abl, Femara
1 yr Herceptin (so far)
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