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08-29-2010, 03:18 PM
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#1
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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Re: Joe passed on this evening
Oh my gosh...prayers for Joe's family. Joe and his wonderful family and this board...a tower of knowledge and strength. " Gently, they go the beautiful, the tender, the kind...I know. But I do not approve. And I am not resigned. by Edna St. Vincent Millay.
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08-30-2010, 07:44 PM
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#2
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Re: Joe passed on this evening
Dear Christine, Danielle and Deborah,
I am so sorry for your loss and all of our losses here on Her2 Support Forum. I had the pleasure of sharing company with you Christine, Joe and Deborah at the ASCO meetings here several years ago and what an honor it was to meet the wonderful people in person, those behind this important forum. Like many, I didn't know of Joe's diagnosis and in a way feel bad about that because, while I am sure he knew how much he was appreciated, it would have been nice to tell him one more time. I pray that all of you can find peace in knowing that Joe accomplished so much in his lifetime and leaves us all with such amazing respect for all he has done for so many. My heart goes out to all of you during this most difficult time.
With sincere condolences,
Rina Schneiderman
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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09-03-2010, 07:07 AM
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#3
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Senior Member
Join Date: Apr 2006
Location: Boston
Posts: 66
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Re: Joe passed on this evening
I was completely stunned to read of Joe's passing, and my thoughts, prayers and sincere condolences go to Christine, Danielle, and Deborah, who so generously shared their husband and father with the extended Her2support community.
My beloved younger sister passed away in August '09 after valiantly fighting the disease for 6 years, and it was the excellent information, support, hope, and love on this site that sustained me and so many others as we have struggled together with our loved ones against this disease.
I know all of us here wish we could have offered Joe, Christine, and his daughters the same kind of support he gave us through this website. He had such a gentle, kind, and wise way as he guided us and was forever looking for ways to improve the site, even when it seemed it could not possibly be any better.
Christine, Danielle, and Deborah, my deepest sympathy as you grieve Joe's passing from this world -- he is surely a powerful guardian angel now; his wonderful spirit will live on in your hearts and memories, and in the ongoing care, support and love that comprises her2support.org
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Emmay - My sister's history:
6/03 Her2+,ER-PR-Breast Cancer, IIb, 7/03 lumpec. rt.brst
9/03 Begin chemo-AC+T
2/04 Mastectomy for local recurrence
3/04 Begin Herceptin, 5/04 Rad to mastec.site
9/04 Recurring Headaches=brain mets
10/04 Craniotomy #1 - rem. 3 br. mets, 11/04 WBR
2/05 Begin Lapatinib(Tykerb) Clinical Trial
5/05 Craniotomy #2 - remove largest brain mets
7/05 Stereotactic Radiation to 2-3 brain mets
10/05 - 3/07 CyberKnife Radiation Treatments for sm brain mets as they arose. Cont. Herceptin
5/07 Begin Temodar+Sorafenib for brain mets
2/08 Begin Tykerb(Lapatinib)+Xeloda for br. mets
5/08 MRI&Biopsy shows ext.new disease, some necrosis
5/08 Begin CPT-11(Irinotecan)+Avastin for br.mets
6/08-4/09 MRIs look great! cont. Herceptin
3/09 Stop CPT-11, brain CTclear-some nausea,backpain
4/09 Scans=pleura,liver,bone mets.
New Rx Herceptin+Avastin+Xeloda
6/09 new Rx Carboplatin+Herceptin
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09-04-2010, 03:45 PM
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#4
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Re: Joe passed on this evening
Dear Christine, Danielle & Deborah
Your husband/father was such a forward thinker and inspiration to everyone. I did have the privledge to speak with him over the phone on a couple of occations my first years as a member of this site. Although this great web site was a gift to Christine, in reality it was a gift to us all. Thanks to Joe and Christine, I was able to connect with my Her2 family when my family at home was snug in their beds. I will be sending a donation to this site in memory of your wonderful husband/father. I am so very sorry for your heartbreaking loss. Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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09-06-2010, 12:59 PM
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#5
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Senior Member
Join Date: May 2007
Location: DFW area (TX)
Posts: 431
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Re: Joe passed on this evening
blessings to a truly wonderful angel. My sympathy to Christine and all of her family. Thank-you for sharing so much with all of us.
Terri
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Terri, spouse of Ruth, Dallas/Ft. Worth area
Ruth dx 05/01/07 (age 50) Filipino
multifocal, several tumors .5 -2.5 cm, large area
Breast MRI showed 2 enlarged nodes, not palpable
100%ER+, 95%PR+, HER2+++
6x pre-surgery TCH chemo finished 9/15/7 Dramatic tumor shrinkage
1 year Herceptin till 6/08
MRM 10/11/07, SNB: 0/4 nodes + Path: tumors reduced to only a few "scattered cells"
now 50% ER+, PR- ???
Rads finished 1/16/08
Added Tamoxifen,
Finished Herceptin 05/08
NOW is the time to appreciate life to the fullest.
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09-07-2010, 05:21 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Re: Joe passed on this evening
I have not logged on for quite a while and was just so saddened to hear of Joe's passing. I only spoke to him once about 4 years ago and he was most helpful to me. If not for this website I would never have had the kind of unbiased information provided to me nor the support.
I always have considered that cancer has a good side in that it allows us to reconcile, redirect, and reaffirm our lives in positive ways. I know Joe was already doing that way back when this website was created.
My warmest thoughts go to Christine and family. My eternal thanks to Joe. He was awesome!
Warmly,
Maria
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Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
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