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Old 07-18-2010, 07:41 AM   #1
Midwest Alice
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Location: Southern Indiana
Posts: 455
Re: Looking for IBC doctor?

Oct. 2010 France
List of US Doctors on the board of the
Second International Inflammatory Breast Cancer Conference

Melissa Bondy
Massimo Cristofanilli
Fredika Robertson
Kenneth van Golen
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Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 07-18-2010, 10:24 AM   #2
atee
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Location: Redmond, WA
Posts: 20
Re: Looking for IBC doctor?

And, with Fox Chase in PA (Philly to be exact), now having Dr. Cristofanilli's second IBC clinic, there is one more place to go.

Our Foundation was invited to the opening in May and I was (as we all were) very taken with the dedication his new team has. We also toured their facilities, including their bio-repository which was fascinating.

Also, they have a beautiful facility for patients to stay **free of charge** while they are getting treatment. We toured that also, and for myself if I had to stay somewhere, that would be the place.

Patti
www.eraseibc.com
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