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Old 07-05-2010, 09:54 AM   #1
ElaineM
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Join Date: May 2006
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Wink Re: skin mets er-/pr- anyone else? Think I am ALONE!

Sorry to hear you are feeling so blue today. Don't give up.
There has been a recent discussion about skin mets at
http://www.ibcsupport.org with links to information about treatment options and information about various creams for skin mets. You do have options besides Taxotere. Hang in there and keep putting one foot in front of the other. Also if it were up to me I would not stop Herceptin. Has your doctor suggestedTykerb or other kinds of chemo? It might be time to get a second opinion.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 07-05-2010, 01:12 PM   #2
Delaney
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Re: skin mets er-/pr- anyone else? Think I am ALONE!

Thanks Elaine, that website is very informative and there are people there who have had skin mets for over 4 years. Maybe I'm not finished yet. Hit such a low today, your reply helped me and hopefully I'll feel better tomorrow.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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