Neratinib Clinical Trial

freyja · 05-09-2010, 06:53 PM

I too started just yesterday evening and no obvious side effects, yet. Hope it doesn't happen in the middle of ballet class tomorrow! I share the mixed emotions with you all. I never wanted to get diarrhea before, but I might be happy to see it this time!
Regardless, happy to help a trial like this.
Celeste

EvansMommy · 05-10-2010, 05:50 AM

Well, it's been five days now, and no side effects. I know that not everyone who gets the drug has side effects, but I doubt I am that lucky!

Oh, well, I'm probably on the placebo. That's ok - at least I am helping out, right?

I feel very lucky to have had a complete response to chemo and to still be NED almost 3 years after being diagnosed, and I am thankful to be able to be part of a trial that might wind up helping a lot of other women in the future.

Of course, I am still holding out hope that the diarrhea starts soon. Haha!