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02-25-2008, 02:01 PM
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#1
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Senior Member
Join Date: Apr 2007
Location: Maple Grove, MN
Posts: 67
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Hi Ladies
I seen my onc a couple of weeks ago for my annual 3month check, everything came out fine(blood work). However in the past week I have been having severe pain in my right breast, it is like someone stuck a pin right through my nipple and it lasts for just about a minute. I won't be having any scans until May, my next appointment. What should I do, should I call my onc and maybe set an appointment for my scans earlier? Should I keep track of how many times a day, week this happens. Any advise would help...I hate that I panick with anything that has to do with my breast. It will be two yrs in July being cancer free.
__________________
Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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02-25-2008, 02:24 PM
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#2
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Hi Theresa; I think you should call your onc and make an appt. to have it checked out, assuming it will be a week or two until you can get in. In the meantime, yes, keep a log of how many times a day, and level of severity. You've already had a week of pains, and by the time you get in to see the doc you will be at the "2 week" mark which is when my onc always says something needs checking out, if it's been going on for 2 or more weeks.
If it turns out to be nothing, that's great, then your mind will be at rest.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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02-25-2008, 08:58 PM
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#3
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Dear Theresa,
i think you should not panic, however I advise to call your onc and let him know what you are feeling. I remember that my onc told me once that I was going to feel strange things in my breast due to the nerve connections that were damaged there. I always feel something, but nothing bad has resulted of it.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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02-25-2008, 09:51 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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I Theresa,
I get twings and twangs in both the affected and unaffected. By T & T, I mean startling sensations but not quite a needle. The affected side is usually achier. I haven't mentioned them, but by all means , make an appointment and mention them, it will make you feel better. It's probably nothing, but hey it's not our job to diagnose. I do think BC people are more likely to notice happenings in their bodies. It could be the Ai's etc. too. I'm a year ahead of you and my scans keep coming out clean even with twings and twangs. Good luck, Bev
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05-07-2010, 08:39 PM
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#5
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Senior Member
Join Date: Apr 2007
Location: Maple Grove, MN
Posts: 67
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Re: Hi Ladies
It has been a very long time since I have been on here, but this is the only place where I can feel a connection to how I may be feeling. I have now been cancer free for almost 4yrs. The pain in my right breast did go away all my scans have been clear, however it (the pain) is back and yesterday I seen my ONC (now every 6 months). She told me my protien number is higher than it has been in the last 3 1/2 yrs. She wants to do a mammagram and ultra sound and now wants to see me every 3 months. Can someone refresh my memory--what is the Her2 protein? is it a over acting cell? or what. I am really trying not to be scared or over reacting to what may be nothing..
Thanks
__________________
Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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05-10-2010, 07:47 AM
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#6
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Senior Member
Join Date: Apr 2007
Location: Maple Grove, MN
Posts: 67
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Re: Hi Ladies
It has been a very long time since I have been on here, but this is the only place where I can feel a connection to how I may be feeling. I have now been cancer free for almost 4yrs. The pain in my right breast did go away all my scans have been clear, however it (the pain) is back and yesterday I seen my ONC (now every 6 months). She told me my protien number is higher than it has been in the last 3 1/2 yrs. She wants to do a mammagram and ultra sound and now wants to see me every 3 months. Can someone refresh my memory--what is the Her2 protein? is it a over acting cell? or what. I am really trying not to be scared or over reacting to what may be nothing..
Thanks
__________________
Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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05-10-2010, 08:43 AM
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#7
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: Hi Ladies
I am copying something SHoba just posted to me: "Perhaps your onc is just extra proactive. But going through these tests does take a toll on us, emotionally and physically"
I couldnt' have said it better. I've just gone through a few months of tests on my liver -- ultrasound and then a CAT scan. My liver is fine. I get needle pain in my lumpectomy breast sometimes, but not steadily. I'm sure you are ok. As for me, Xanax was this girl's best friend for a few days around my Cat Scan. I don't try to brave out the anxiety any more.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-10-2010, 11:55 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Re: Hi Ladies
I get the needle pain sometimes too...
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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05-10-2010, 02:02 PM
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#9
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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Re: Hi Ladies
Theresa,
I wondered if your doctor was talking about the 'protein' number getting higher in your blood test. It could be a signal of something unusual in your system such as new tumor growth. I'm glad your doctor is being cautious and trying to get ahead of the game. There are many reasons for 'changes' to be detected in our blood tests. I'm keeping my fingers crossed...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
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IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
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Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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