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Old 03-20-2010, 10:08 PM   #1
Lisajean
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Join Date: Jun 2009
Posts: 5
Re: percentage of those who respond to Herceptin

Dear Adrien and Gerri,

Thank you both so much for your replies and for being so quick. I live alone and so hearing back was so meaningful. I am so sorry for your recent losses. Thank you for your support - especially during such a difficult time - I truly and greatly appreciate it.

I just wrote a reply, but, because I was not logged in, I lost it (feel like I am losing my brain).

So this is my second attempt at replying.

I had expanders put in - that is what I was told was the thing to do - when I had the mastectomy. So now I can not have an MRI until the expanders are out. My onc says that is okay. But, obviously, I can not delay having the surgery to get these out for too long. So, my surgery (that was scheduled for 3/29) is now postponed - for about 5 or 6 weeks. I am not sure of the new date. I just told my surgeon I could not do it yet.

The expanders are so uncomfortable. Because of the expanders I am physically uncomfortable all of the time, in pain, have limited mobility in my arms (one frozen shoulder - perhaps from radiation - but either way - it is not cooperating).

I feel so ashamed to be seemingly unable to cope. I just wish I didn't have these expanders in my body.

Thank you so much for getting back to me so quickly. it helps a lot.

Lisa
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Old 03-20-2010, 11:19 PM   #2
adrien
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Join Date: Oct 2007
Location: Balmain Sydney NSW
Posts: 53
Re: percentage of those who respond to Herceptin

That must be very hard living by yourself and with a baby too. How did you do it. No wonder you're at the end of your string. Don't be hard on yourself.You've been brilliant coping this far.
PS What are expanders?
__________________
1999 IVDC oe+ grade 3
epirubicen, cysplatin, 5FU;
lumpectomy L breast, radiotherapy 6 wks, tamoxifen 3 mths, Examestane 5 yrs

2005 mastectomy (Left ) 10cm IDC in lymphatic system and blood vessels oe- HER2 ++;Taxotere, Herceptin 18 mths
2006 skin tumours below scarline Add Femera, 3 weeks radiotherapy twice daily (unsuccessful)
excision of tumours.
2007 jan skin tumour on L chest wall; positive Right axilla
Temerifen.
September Ca markers rise. Start Tykerb 3 wks radiotherapy
2008 skin tumours regrow. latissimus dorsal flap for excision of skin tumours March 08. HER2++++
Faslodex injections
CEA and Ca15.3 rising
2009
CT scan shows multiple mets in liver, lungs and inguinal glands. Stop Tykerb. Start Xeloda
CEA and Ca15.3 dropping like a stone. Skin tumours disappear.
Return 6 months later.
CT shows increase in size and number liver and lung mets.
Oct: Cyclophosphamide
Markers continue to rise. Change to Caelyx
2010
CEA marker in the 2000s Back to Herceptin
New tunour R Breast
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