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Old 03-20-2010, 08:41 PM   #1
Lisajean
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Posts: 5
Re: percentage of those who respond to Herceptin

I feel sick. I am so scared and worried. I don't have a right to come here with that - I mean we are all going through this. I was diagnosed in March of 09, had 6 rounds of taxotere/carboplatin, bilateral mastectomy - Aug, 09, rads (were delayed by infection) completed by 12/09. I am completing the year long Herceptin now. Terrified to be going off of it. Terrified in general.

How does one get through this? Does one get through this. Sorry to be so grim. I just postponed reconstructive surgery because I am feeling too weak (body and mind) to have it right now. And, I just want to survive this - having "breasts" again seems so stupid right now, like I care about that.

I have just lost it recently - having trouble holding it together - so I came here and now, I am even more afraid. Any suggestions? Anti-depressant maybe? I don't know what to do.
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Old 03-20-2010, 09:33 PM   #2
adrien
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Join Date: Oct 2007
Location: Balmain Sydney NSW
Posts: 53
Re: percentage of those who respond to Herceptin

YOur post brought tears to my eyes because it is how many of us have felt and many still do.
You did just the right thing postponing your reconstruction. There's plenty of surgeons around who can do that when you're ready. This is the time to be kind to yourself, rest, heal, call upon your family and friends ( I really hope you have someone there for you). CRy lots and laugh lots, dance, walk in the rain, pick flowers. Do what you want as much as your circumstances allow you.
I'm sure you'll get much more practical advice from others here but I feel strongly this is your time for you to do what makes you feel goood. Anti depressants are quick fixes. While i wouldn't say don't take them-think-what else makes you feel better?
From one who's been there many times.
Love,
Adrien
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1999 IVDC oe+ grade 3
epirubicen, cysplatin, 5FU;
lumpectomy L breast, radiotherapy 6 wks, tamoxifen 3 mths, Examestane 5 yrs

2005 mastectomy (Left ) 10cm IDC in lymphatic system and blood vessels oe- HER2 ++;Taxotere, Herceptin 18 mths
2006 skin tumours below scarline Add Femera, 3 weeks radiotherapy twice daily (unsuccessful)
excision of tumours.
2007 jan skin tumour on L chest wall; positive Right axilla
Temerifen.
September Ca markers rise. Start Tykerb 3 wks radiotherapy
2008 skin tumours regrow. latissimus dorsal flap for excision of skin tumours March 08. HER2++++
Faslodex injections
CEA and Ca15.3 rising
2009
CT scan shows multiple mets in liver, lungs and inguinal glands. Stop Tykerb. Start Xeloda
CEA and Ca15.3 dropping like a stone. Skin tumours disappear.
Return 6 months later.
CT shows increase in size and number liver and lung mets.
Oct: Cyclophosphamide
Markers continue to rise. Change to Caelyx
2010
CEA marker in the 2000s Back to Herceptin
New tunour R Breast
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Old 03-20-2010, 09:44 PM   #3
Gerri
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Location: Southern California
Posts: 900
Re: percentage of those who respond to Herceptin

Lisajean,

Of course you have a right to come here with your fears, that is exactly what our support board is for. We have suffered so many loses lately, and it is a very sad time for us, but please know that there are many of us out here that are doing well.

I don't know that I have any great words of wisdom about how to get through this, just know that it does get better. Take one day at a time, and if that is too difficult break it into smaller parts. Make sure you are getting enough rest and are eating well....and don't forget to breathe...slowly and deeply, it will release some of the tension you are feeling. Be sure and mention to your onc that you are having a little trouble dealing with the stress - your emotional health is important too as you go through treatment and he/she may have some suggestions to help you cope.

Come here anytime you need support - we are here for you.

Take care,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
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Old 03-29-2010, 10:08 AM   #4
Nancy L
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Join Date: Apr 2009
Location: La Quinta, Ca
Posts: 253
Re: percentage of those who respond to Herceptin

I have searched and asked several oncologists for stats on recurrence based on other factors at diagnosis like stage and ER status. Logically I know that more women diagnosed with Stage III breast cancer (like me) recur than those diagnosed with Stage I.

I believe throwing all women who receive Herceptin in the same bucket for 5 yr stats is misleading and unnecessarily frightens many women diagnosed with early stage breast cancer. Women diagnosed with Stage I disease who receive Herceptin are very fortunate and should have great hope for a long healthy life.
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