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Old 03-19-2010, 02:54 PM   #1
felicia
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Location: Bucharest, Romania
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Re: Mets to bone

Thank you very much Jacqueline!

Best wishes,

Felicia
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24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!

My story at:
http://feliciaenache.blogspot.com/20...estea-mea.html

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Old 03-19-2010, 12:46 PM   #2
lucian1
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Re: Mets to bone

te pupam.vezi ca te gasim si-n gaura de sarpe...) ned inseamna no evidence of desease- nici o urma de boala. ce faci? cum te mai simti? e frumos foc baiatul tau...lasa ca o sa-i joci la nunta stai linistita.i,m sorry guys i wrote in romanian language but i know felicia and i support her and all of you in your struggle against cancer.te pupam,ianis,gabi si lucian.
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Old 03-19-2010, 01:58 PM   #3
felicia
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Re: Mets to bone

Hello Lucian!
Chiar ca e foarte mica lumea!
How small the world is. What a nice surprise. How are you?

Kisses,
Felicia
__________________
24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!

My story at:
http://feliciaenache.blogspot.com/20...estea-mea.html

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Old 03-19-2010, 01:10 PM   #4
Lien
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Location: Haarlem, the Netherlands
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Re: Mets to bone

Dear Felicia,

I read the translation of your blog. I'm impressed. NED means No Evidence of Disease.
Hug your boy! Enjoy every minute with him.

Love

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 03-20-2010, 04:40 AM   #5
VirginiaGirl
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Location: Fredericksburg, VA
Posts: 93
Re: Mets to bone

Hi Lopsided,
I have mets to my bones, that's really the only place, all through my spine and hips. I finished abraxane/herceptin in November and it took care of the couple lymph nodes that went active, but I had progression in my bones. I had not been doing zometa for a while due to concerns about side effects (specifically jaw bone deterioration) but have started it again and hope it will work as well as it has in the past. I haven't had radiation to my bones, we've approached it twice and have decided to go with more systemic treatment. The initial radiation to my breast left me more tired/exhausted than any of the chemos I've done.

I know I've aged a lot since chemo and being menopausal. I have an identical twin sister (no BC for her thank god), and so seeing pictures of us together or the few times a year we get to visit is sort of painful because it's really "in my face" how much older I look than she does. It really makes me sad, so I just remind myself I'm happy to have hair (for now) and of all the wonderful things that have come from having BC, and I remember I'd rather have the wonderful things - like being closer to my husband and having a much deeper spiritual life.

Peace and Blessings,
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Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin

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Old 03-23-2010, 03:00 PM   #6
felicia
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Re: Mets to bone

Hi Virginia,
I also have the same problem. I looked at some pictures on 2 years ago and even last year and I did not believe it how much I've aged in the 9 months since I discovered that I had cancer. Chemotherapy, pain and despair have left deep marks on my face. And I'm so sad too. I look 10 years older now.

Felicia
__________________
24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!

My story at:
http://feliciaenache.blogspot.com/20...estea-mea.html

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Old 03-23-2010, 08:32 PM   #7
Catherine
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Posts: 715
Re: Mets to bone

Hi Sheila,

Hey it is okay to whine. I think you sound very bright and very brave. I only had 12 weeks of chemo, and I still feel the fatigue and some of the other things I like to complain about.

Take care and all the best,
Catherine
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Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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