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Old 01-06-2010, 04:14 PM   #1
WomanofSteel
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Join Date: Nov 2007
Location: New Jersey
Posts: 889
Re: Changes to my Navelbine & now side affects...

Chelee I am sorry you are having a nightmare of a time of it lately. I too have constipation problems. I put the lactulose in a cup of tea. It sweetens the tea and makes it easier to swallow and I think the warm beverage helps.
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dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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Old 01-06-2010, 10:24 PM   #2
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: Changes to my Navelbine & now side affects...

WomenofSteel, I always start my morning with two cups of tea & since the bc dx I quit using suger in my tea. But that is a great idea to use the lactulose in it. It is SO sweet...should work perfect. That's really a great idea...will try it tomorrow morning.

Rich, I about died laughing about your ER comment, and using the oncology floor. Maybe I'll request one of the chemo nurses to come in around 11:00 PM that same night for my Navy Beans. I'm sure once I explain why it's so important they will gladly agree to do this. I'll let you know how that goes? lol

Adriana, So your another one that had jaw pain with Navelbine. I'm finding out it's more common then I first thought. I love the licorice twisters idea. Black licorice is one of my favorites. What a great excuse for me to buy licorice....yummy. Thanks!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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