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Old 11-17-2009, 08:02 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: How many of you have had a bone scan?

It seems everyone with the exception of one person here has had a bone scan so far. In the almost 4 yrs I've been dealing with this you would of thought I would of had at least one in all that time?

I had my 1st one Monday only because Dr. Femino from City of Hope ordered it or it would of never happened. I haven't seen the results yet? Hope they don't find any more mets. I have my femur surgery tomorrow as City of Hope so I pray everything goes ok? Thanks to all of you that replied? I'm going to ask my onc why I never had one in all this time once I get home.

For anyone else reading this that hasn't replied...feel free to say if you had one or not? I will check the board whenever I get home from the hospital...should be 3 days if all goes ok.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 11-17-2009, 08:20 PM   #2
Barbara H.
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Join Date: Sep 2005
Location: Newton, MA
Posts: 951
Re: How many of you have had a bone scan?

I had so many of them on the TDM1 trial that I have lost count. I also had to have CT and Muga scans every 6 weeks. Actually, I try to avoid scans as much as possible.
Good luck with your surgery.
Barbara H.

PS: I would reply more often, but I am just too busy with teaching which requires me to also put in a lot of work during the evening and weekends.
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Old 11-17-2009, 08:27 PM   #3
Cannon
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Posts: 203
Re: How many of you have had a bone scan?

Chelee,

Like you, stage IIIA and absolutely bone scan at diagnosis and every six months since! (nothing, thank God) Sadly, I'd say it's another example of your doctors' gross incompetence.
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Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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