|
07-10-2009, 02:50 PM
|
#1
|
Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
|
Pounding noise from Herceptin or??
Mom has had this thing at times where she asks me if I hear a pounding noise.."thump, thump" etc. I never do. It's been brought up but the only suggestion from an NP was Claritin. Mom also has the Herceptin runny nose and some congestion but I figured I would ask if anyone has thoughts.
|
|
|
07-10-2009, 03:05 PM
|
#2
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
ever since i did the herceptin i swear i can hear my pulse in my right ear, and always have this pressure feeling there. can't find any reason for this and i think the drs think i'm crazy. let me know what you find out.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
07-10-2009, 03:37 PM
|
#3
|
Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
|
How's your Mom's BP?
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
|
|
|
07-11-2009, 11:30 AM
|
#4
|
Guest
|
I had the same sensation while on herceptin. I thought I heard a phone on vibrate. I saw a substitute onc and she didn't seem to take me seriously. It happened about 4 times.
Marilyn
|
|
|
07-14-2009, 10:24 AM
|
#5
|
Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
|
Wow...I didn't mention it but Mom hears the pounding mainly in the right ear too. She doesn't think it's pulse but maybe they could monitor pulse at clinic and ask her if it is in sync.
Her BP is generally normal. But when she first sat down at her last infusion it was initially elevated. Maybe next time she hears it we'll check it with a home style monitor. Maybe it happens during a BP spike?
|
|
|
07-14-2009, 05:17 PM
|
#6
|
Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
|
Another thought, Rich, with our ever plagued sinuses we sometimes have fluid trapped behind our eardrums. It can can cause a multitude of sensations. I feel a "flutter" deep within my ear. When I am quite congested my hearing is affected. The pressure at times can become very uncomfortable. I also know, and the reason for my BP inquiry, that some folks have a pounding in their ears with elevated BP.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
|
|
|
07-14-2009, 11:04 PM
|
#7
|
Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
|
She also feels occasional pain in the right ear and sore throat on the right side. Anyone tried Claritin D or the like for this?
|
|
|
07-15-2009, 08:31 AM
|
#8
|
Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
|
Herceptin issues with ears
Wow - I thought I was crazy - but I too have a sensation of a pulsating in my ears - and I asked the doctors here about it and they said it was a sign that my blood pressure was high - so they started checking my pressure every day and its low 80/100 .... so they think I am crazy too... however I have the sensation mostly when I lie down to sleep - it seems like a rushing sound almost and I hear what seems to be my heart in my head --- I was trying to ignore it but now I guess others have this too, so must be the Herceptin...
|
|
|
07-15-2009, 02:47 PM
|
#9
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
take claritin every day and that has made no difference. and my blood pressure is always low so that's not it. different sounds seem to make it worse.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
07-24-2009, 08:17 AM
|
#10
|
Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 30
|
Pulsatilie Tinnitus
I have the same problem in my right ear and the same sinus issues. My oncologist states that it is caused by my anemia. However, he sent me to a specialist for testing and a functional MRI (fMRI). The otolaryngologist stated it is a drug-induced side effect of the carboplatin. Platins are considered to be ototoxic. So, in my case it is proabably a combination of the two causes.
Reference website:
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=2686891
"Tinnitus is also a side effect of some oral medications, such as salicylates, nonsteroidal anti-inflammatory drugs, aminoglycoside antibiotics, loop diuretics, and chemotherapy agents (e.g., platins and vincristine)."
The otolaryngologist had me use a sound therapy device (at night) that produces soft sounds, and it helped me. The pulsatile tinnitus has not gone away completely; however, there is much less noise and I am getting more sleep.
Hope this helps.
__________________
Margo
Diagnosed 08/2004 @ 45; Metaplastic Breast Cancer (MpBC)
Stage IV, HER2 3+, ER-/PR-, Met to Liver
08/2004 - Neo-adjuvant Taxotere/Carboplatin/Herceptin (TCH) - 4 rounds.
09/2004 - Herceptin - Weekly.
11/2004 - Liver RFA, followed w/TCH - 2 rounds.
12/2004 - Lumpectomy, axillary node dissection, followed w/TCH - 2 rounds.
05/2005 - Radiation - Breast, shoulder, neck (left side) - 35X
09/2005 - Developed severe osteoporosis - Boniva - monthly
04/2008 - Herceptin - Every 3 weeks (changed from weekly).
05/2012 - Mets: 3 new liver and 2 lymph nodes.
06/2012 - Start 16 rounds Navelbine and Herceptin weekly.
11/2012 - Liver resection, RFAs (8), lymphadenectomy (2), cholecystectomy.
12/2012 - Herceptin and Letrozole.
05/2014 - Mets: 5 aortocaval nodes & 1 mesenteric.
06/2014 - Herceptin/Perjeta/Taxotere - 6 rounds.
10/2014 - Herceptin / Perjeta - Open ended
04/2015 - Progression: Porta hepatic node, 2 aortocaval nodes.
05/2015 - Exploratory surgery treating progression, 12 nodes removed.
07/2015 - Restart Herceptin / Perjeta
01/2016 - Progression 8 nodes.
02/2016 - Starting T-DM1 (Kadcyla) - Open ended.
07/2017 - Progression.
|
|
|
07-24-2009, 09:07 AM
|
#11
|
Senior Member
Join Date: Feb 2009
Posts: 1,526
|
Hi I have also had the pressure feeling in my ears and an occasional pulsating sound.It was there when I was just on herceptin and I wondered if it was related to the bunged up sinus problems. I had3 months off herceptin and by the third month it had completely resolved. Now back on taxotere with herceptin and it's back again. It used to make me feel slightly light-headed and dizzy also.
Ellie
|
|
|
07-24-2009, 10:58 AM
|
#12
|
Senior Member
Join Date: Jun 2007
Posts: 2,210
|
How interesting. I have been trouble shooting a pressure in my right ear/temple area for several months. Now wonder if it is related to tx.
You learn something every day here!
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
|
|
|
07-26-2009, 08:18 PM
|
#13
|
Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
|
This is very interesting, considering it seems to be collectively viewed as isolated symptoms. (?) Margo..What kind of sound therapy device do you use?
|
|
|
07-27-2009, 11:31 AM
|
#14
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
will print this off and take it to my pcp when i go later this month.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
07-27-2009, 02:31 PM
|
#15
|
Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 30
|
Hello Rich,
The otolaryngologist gave me a list of three. The second one I purchased was from Brookstone. It has three categories of sound: relax, sleep, and renew. It was called tranquil moments. I have the travel size.
The key is to get a unit that allows fine tuning of the sound in small increments. The otolaryngologist stated that the brain begins to "over focus" on the pulsatile tinnitus and it actually becomes louder (auditory habituation). The tinnitus eventually becomes a deep pathway that the brain cannot avoid or go around.
The sound therapy is a form of retraining the brain and making the tinnitus pathway shallower.
During the first week, I used an earphone in my right ear, because the pulsatile tinnitus was so loud. I really stuck with this therapy and after 2.5 months the sound had diminished considerably. I hope this helps your mother. Let me know if you need additional information.
I wonder about the Herceptin effects too.
__________________
Margo
Diagnosed 08/2004 @ 45; Metaplastic Breast Cancer (MpBC)
Stage IV, HER2 3+, ER-/PR-, Met to Liver
08/2004 - Neo-adjuvant Taxotere/Carboplatin/Herceptin (TCH) - 4 rounds.
09/2004 - Herceptin - Weekly.
11/2004 - Liver RFA, followed w/TCH - 2 rounds.
12/2004 - Lumpectomy, axillary node dissection, followed w/TCH - 2 rounds.
05/2005 - Radiation - Breast, shoulder, neck (left side) - 35X
09/2005 - Developed severe osteoporosis - Boniva - monthly
04/2008 - Herceptin - Every 3 weeks (changed from weekly).
05/2012 - Mets: 3 new liver and 2 lymph nodes.
06/2012 - Start 16 rounds Navelbine and Herceptin weekly.
11/2012 - Liver resection, RFAs (8), lymphadenectomy (2), cholecystectomy.
12/2012 - Herceptin and Letrozole.
05/2014 - Mets: 5 aortocaval nodes & 1 mesenteric.
06/2014 - Herceptin/Perjeta/Taxotere - 6 rounds.
10/2014 - Herceptin / Perjeta - Open ended
04/2015 - Progression: Porta hepatic node, 2 aortocaval nodes.
05/2015 - Exploratory surgery treating progression, 12 nodes removed.
07/2015 - Restart Herceptin / Perjeta
01/2016 - Progression 8 nodes.
02/2016 - Starting T-DM1 (Kadcyla) - Open ended.
07/2017 - Progression.
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:15 PM.
|