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Old 07-01-2009, 03:25 PM   #1
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
OK Y'all
You guys (that includes the girls)

That was sure fun! All together now,

Breathe in
Breathe out
Breathe in
Breathe out

Same thing, all day long. For as many days as we have.

I love you ALL. Nobody else can understand me (us) except you (us).

Peace and MUCH MUCH love,
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 07-01-2009, 03:28 PM   #2
WomanofSteel
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Join Date: Nov 2007
Location: New Jersey
Posts: 889
I think it's the sunshine posts that keep us all going!
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dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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Old 07-01-2009, 04:19 PM   #3
Becky
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Location: Stockton, NJ
Posts: 4,179
I realize that this board is split with several different populations. There are the Stage 4 battlers who are undergoing additional treatment (sometimes with success or they are onto something new). There are the women who are newly diagnosed - thrown into the new world of cancerland and beginning treatment, there are the caregivers - hungry to stay on top of things to help their significant other. There are also those who have finished treatment (regardless of initial Stage) and are NED.

Each population has some of the same needs (such as wanting to stay on top of the newest treatments and standards of care. Or the latest on lifestyle prevention measures/supplements etc). However, there may be different needs within populations. Never the less, we are a group who is here for each other. I admit, I feel for those who are not responding to treatment or have been thrown for a loop in finding new METs elsewhere. I can honestly say I feel guilty about it that I am ok for now (enough that I rarely ever say that I am ok for now). However, I also don't post about potential problems either (aches, headaches) etc.

If we can't post the good or post the bad or post the side effects (which might be next as one woman might have horrible and unusual side effects to a drug that might be out of the norm. That post might scare somebody - so now those things can't be posted?) When will it stop? I suppose when there is nothing else to be able to say, eh? There won't be anything we will be allowed to post about at all. We can come on and see the Articles of Interest but won't be allowed to post.

I don't read every post on the board and I don't read some individuals posts at all. I suggest others do the same because we are a family and we aren't all going to get along so ignore the folks you don't want to read. It works well. Try it.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 07-01-2009, 04:33 PM   #4
Barbara H.
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Join Date: Sep 2005
Location: Newton, MA
Posts: 951
sun

Hi Brenda,
We could use some of your sunshine up here in the northeast. We have had the rainiest June I can remember, and it appears as if July will not be much better. I guess we will have to get our vitamin D with supplements this summer.
Best,
Barbara H.
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