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06-26-2009, 01:06 PM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Oh dear sweet Eric...my heart is hurting so badly for you now and I type this with tears in my eyes. I so wish I could do something or say something to make the pain all go away.
I can and will pray for you and Caryn all day......asking for that miracle.......and then leaving it with the One who knows our tomorrows and promises to never leave us or forsake us.
Gentle hugs to you Eric.....my prayers surround you and Caryn.
Peace
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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06-26-2009, 01:50 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Thoughts with you and your family
Hi Eric,
You have fought so hard for Caryn and I have been so impressed with your posts and how they reflected your loving care for her and your children. My heart goes out to you and your family. Please know that all of you are continually in my thoughts.
Barbara H.
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06-26-2009, 02:19 PM
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#3
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Senior Member
Join Date: Aug 2007
Location: Minnesota
Posts: 128
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Dear Eric ~
Your battle certainly has not been lost. You and Caryn have fought with the dignity and grace of legends past. Cancer didn't win, the battle isn't lost -- but perhaps it is time for Caryn to move on to her life of peace and wait for you.
Her pain ends but her peace begins. Your pain becomes deeper but your life has been richer for the loving and the fighting together.
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06-26-2009, 02:52 PM
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#4
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Eric, I echo the words of Abbydawg. I have no miracle cure or great words of wisdom. I just offer my prayers to you and your family and Caryn. You are truly a blessing to her.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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06-26-2009, 03:17 PM
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#5
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Senior Member
Join Date: Jan 2006
Posts: 42
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Thinking and praying for you and Caryn, I am so sorry that you have to go through this. It does suck!!!!!!!!
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06-26-2009, 04:33 PM
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#6
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Senior Member
Join Date: Apr 2006
Posts: 131
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Please add my prayers to the list.. Please , also take care of yourself..Charlotte
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06-26-2009, 05:29 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Eric,
I am holding Caryn, you and your family in my heart and prayers. May God give you comfort, strength, peace and understanding.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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06-26-2009, 05:32 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Eric -
I know how hard you have fought to hold Caryn up and help her keep going. She has done so much already, but the cancer inches forward anyway.
If it were my case, I would leave it up to Caryn whether there is anything more she wants to try. If she is in the hospital, it seems that no study drug could be adminstered there, unless it is actually a cancer center.
My prayers are fervent that she is comfortable and comforted. That goes for you and the children. Words just can't describe the heartache you all have, and the sorrow we feel is only a penny's worth.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-26-2009, 05:47 PM
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#9
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Senior Member
Join Date: Jul 2006
Posts: 869
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I am thinking of you and yours. Ceesun
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06-26-2009, 05:47 PM
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#10
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Senior Member
Join Date: Sep 2005
Posts: 290
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Public Wyeth Drug Announcement This Month
Eric,
I saw Joe's mention of a new drug called neratinib on this thread, and I found an article about it online. Wyeth is a drug company here in PA. It looked promising in it's trials so far. It seems that it acts on intracellular end of the receptors of the HER2 cell, whereas Herceptin acts on the extracellular end. I don't know if Caryn would qualify for their upcoming Phase III trial. Here's the link:
http://www.medicalnewstoday.com/articles/152211.php
Tom
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06-30-2009, 10:16 AM
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#11
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Eric,
I am heartbroken to hear this news. It is difficult to accept. You, Caryn and you're family have been so
strong and brave. Please know my prayers are with
for continued strength and yes a powerful miracle.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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