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Old 06-12-2009, 08:57 PM   #1
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Oh Chrisy, knowing and loving you for 2 years has allowed me to know what you meant. Fret about those jelly fish getting too close to you instead. (smiling hard)>>Marie
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 06-12-2009, 09:29 PM   #2
caya
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Location: Thornhill, Ontario Canada
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Marie, I am so sorry to hear this news... I know you and Ed will fight this with the help of your good drs.. and the grace of G-d.

Sending many prayers from Canada, and big hugs to you both.

all the best
Caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 06-13-2009, 11:21 AM   #3
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
These posts and your loving support is the strongest force pulling me through this right now. I am so depressed and cannot stop crying, the tears literally fall from my eyes with no effort.

But I refuse to give up and so does Ed. He has told me that it is time to stop pushing him and although the hardest feat I have ever had to accomplish, I have stopped. I am here to exhibit his options and help him to live the rest of his days with honor and grace.

It is important to him for me to keep coming here long after he leaves, as long as it does not depress me. I need you all to know that I could never leave you and would never pass judgement for anyone that had to. It would be my honor to continue to celebrate your victories and to wipe your knees when you fall. You have enriched our lives beyond words and all hold a different part of my heart. I truely have meant it when I say Ed and I are truely indebited to your friendships.

Monday will hold alot of our future and at this moment I am just trying to keep hopeful until then. A couple of special friends who are Angels now always told me to follow my heart and his body and you will know when it is time. Sadly, as much as I try to ignore these feelings, deep within I do know. That is not to say that we have given up; fighting for every last breath!

On a lighter note, Ed went fishing with a friend so close to the family that he is family. Mighty Oak is a big animal lover and gave up fishing years ago. Just something he wanted to do again while he can. I went to breakfast with this gentleman's Mom, she lived with my Mother-in-Law. We stopped at some yardsales and I bought a few pieces of old glass that I knew she would have picked up and gave a home to. Funny how Ed and I spent our life getting new things, new furniture, always trying to improve the way we modestly lived. Now I have a room full of her antique furniture, glass and nick nacks.

Thank you again for walking me through this. These replies remind me to keep breathing and keep the faith until we know more. His brain is loaded with more mets than you could ever imagine, too many to count, they gave up after counting to 50. We need a miracle one last time and I will never ask God for another miracle for Ed and I. I love you friends with all my heart....you will never know.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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